Hi.Me again.Still suffering from constant dizzy/lightheaded spells
 everyday.It just won't go away.Doctors I see seem to be quite
 clueless about it and can't help me.Taking now xanax pills which helps
 to relaxme when the sensations are really bad.Helps a little.  Have
 lost interest in many things like going out for parties
 ,shopping,eating out etc.Cancelled my holiday plans due to feeling
 giddy.Feel so misearable.How i wish i was normal again.Envy other

Hi, I have been getting lightheadedness since 8/97.  I was on an
 airplaine  and thought it was just motion sickness.  After landing, it
 continued.  Lightheadedness, nausea, and after 2 ear nose throat
 doctors, and one   neurologist, one says it is my sinuses, and the
 other two say it is a   virus.  Now lets be honest, when doctors call
 something a virus, they  really don't know what is the cause. A virus
 will not cause symptoms  for this long of a time.  I take anitvert, and

Hi again! left a message back in Oct. Had all my tests(MRI ENG)done.
 they all came back normal and I was told by my ENT that he didn't have
 a diagnoses for me.  I was feeling fine for about a month 1/2  and now
 arounf the holidays I'm feeling off and feel like I haven't  slept in
 weeks.  Has anyone tried natural remedies that have worked  for
 them?(vitamins or herbs) Please e-mail me with suggestions
 THANKS!!!!!!!!

Dizziness?  Ear infections?  Chronic sinusitis?  Two years of these
 problems have taught me this:  your first stop should be an allergist.

Hi, I have been feeling dizzy, tilting, and even passing out. I've been
 through many test. MRI, Blood test,Heart. The main concern was the
 passing out, I had a table tilt test and failed it. So now they are
 telling me I have Neuro-Vagas-Syncope, I am taking Promatine, BUT I
 still feel the same. I only feel like this when the weather changes to
 the cold. I have to do one more test. My doctor say's that sometimes
 there's a cyst that sit on my kidney that can cause passing out. He

Hi, I have been feeling dizzy, tilting, and even passing out. I've been
 through many test. MRI, Blood test,Heart. The main concern was the
 passing out, I had a table tilt test and failed it. So now they are
 telling me I have Neuro-Vagas-Syncope, I am taking Promatine, BUT I
 still feel the same. I only feel like this when the weather changes to
 the cold. I have to do one more test. My doctor say's that sometimes
 there's a cyst that sit on my kidney that can cause passing out. He

I have had bileral perilymph leaks for 18 years.I had surgery several
 years ago but feel it is still leaking.I become dizzier with
 exertion.It has meant a complete change in lifestyle.I beleive it is
 very rare to have it in both eyes.I have managed to slow life down to a
 very pace which I can cope with.Is there any one out there with the
 same complaint.

 This past week I just stepped into the land of the surreal --
 fogginess, dizziness, lightheadedness.Concentration is a luxury at this
 point.I am (was) very healthy at 22.I am welcoming myself to the club
 with this e-mail...hoping and praying things improve.  Sincerely --
 Alice in Wonderland, a.k.a. Cory  p.s. 1st Drs'.appt. today...he was
 pretty stumped-- I'm on Claritin for now, I guess we'll have to wait
 and see. ; )

Hi Cory, Ask your DR for an ENG.  It's a test that will  help determine
 if you have an inner ear problem.  check out   the website for the
 Vestibular Disorder's Association (VEDA):
 http://www.teleport.com/~veda.  They have lots of good info   and even
 provide lists of drs. in your area that treat  ear disorders.  I'm 27
 and have bilateral BPPV.  Feel free  to e-mail me.

Desperately looking for information I came upon this web site. I was
 deeply saddened and inspired by all of your messages. I feel I'm one of
 the lucky ones. I have a vistibular viral infection since May of 98.
 Woke up with the room spinning and my life took a slow and long  nose
 dive. Now I am recovering... Thanks to the care of Dr. Stuchly, dear
 friends and family.

I've had several dizzy spells since Dec (when I wrote my first notes)
 Each time the Afrin(oxymetazoline)nasal spray gave immediate relief.
 It's happened enough to where I don't think it's a coincedence. I only
 use half the dosage(1 spray) and usually don't have to use it again
 until the next dizzy spell. But I also use Flonase and it really helps
 to counteract the side effects of the Afrin. Still being retested by
 dr's but I doubt if anything will be found, but it's been 10 years...

I've had several dizzy spells since Dec (when I wrote my first notes)
 Each time the Afrin(oxymetazoline)nasal spray gave immediate relief.
 It's happened enough to where I don't think it's a coincedence. I only
 use half the dosage(1 spray) and usually don't have to use it again
 until the next dizzy spell. But I also use Flonase and it really helps
 to counteract the side effects of the Afrin. Still being retested by
 dr's but I doubt if anything will be found, but it's been 10 years...

so I think it's worth the trouble just to make sure something else has
 not gone wrong. Please E-mail me if the Oxymetazoline spray works if
 you try to use it. I told my Dr., and he said a drug of the same class
 was used years ago in treatment for vertigo, so he didn't think it was
 that far-out sounding.

Hi, I have been suffering with cv-dysfunction for over 10 years...but
 only just started to realise it was the culprit that was causing so
 many problems in my life.  I had severe tinitus, anxiety, nausea for
 the first 2 years it slowly diminished.  It has started to get worse
 again in the last 2 months.  I'm reading as much as I can.  I recently
 ordered "Phobia Free" by Dr harold Levinson...he relates phobias with
 cv-dysfunction.  I HOPE IT HELPS!!!

Hi, I have just recently been diagnosed with vertigo.  I was on a two
 week subscribtion of meclazine and thought it was taking care of my
 symptoms.  After returning to work from a two week holiday break my
 sysmptoms reappeared.  Slowly in my left ear and now the constant
 feeling of nausia and dizzyness is back.  I have seen a specialist who
 is now working on a more descriptive diagnosis.  I would do anything to
 be rid of these sick feelings.  If you have any suggestions, please e-

Hi - I have been suffering from constant dizzy/nausea/spacey feeling
 since '87.  Haven't found a cure yet - tried 15 doctors - no luck. One
 said cervical vertigo, one said Meniere's, etc.  Have been trying self
 treatment - not much success.  Next trip should be allergist.  Always
 worried if initial violent spinning will come back.  Always on edge.
 Takes the fun out of life!  You all might try checkint out SERC - it's
 not available in US, but in Canada.  Let me know if any success.

Hi! I have been suffering from inner ear problems for 7 years now. I
 have recently published a book in the hopes of helping other people
 cope with some of the issues that accompany this sort of "invisible
 illness."  Please stop by my web page (you will see ordering
 information there) at http://home.att.net/~Smith-Merritt  Feel free to
 e-mail me with questions also. Thanks and hope to meet some of you!

Have a son (autistic)  who has a mito disorder that attributes to a
 movement disorder upon arising out of bed, will go into a five minute
 "seizure" (Not sure if this really what we should call it), he is fully
 conscious, his legs will stiffen, writhe and tick at the hips and toes
 and ankles.  Last about 5 minutes, every single morning.  Did blood
 sugar test, blood pressure tests, adrenal fatigue tests...nothing has
 really stopped it, but a supplementation has reduced it down to one or

Dizzy  Why does It have to be I am dizzy,  I try to move and stay busy,
 but for some reason I can't control the whizzing,  as I try to get a
 hold of my vision. The doctor says to take this pill to control the
 spin,  but no matter what I just can't win.  Today seems to be a good
 day,  but tomorrow I will have pay. because no pill or exercise will
 do,  I will be unable to enjoy the day, so on my bed I lay.

Try to remember that there are a lot of side effects that must be
 treated along with your illness. Like anxiety,depression and tension
 headaches. just taking care of the side effects is half the battle Best
 wishes to you all. I'm feeling so much better, now that I know you must
 not only treat the illness but also the person.

hello..i'm a 35 year old woman who began this journey 1 year ago.
 started with severe nasuea, then came the dizziness.  went to various
 drs, neurologists & am now seeing balance disorder specialist.  thought
 i was finally getting better but after a terrible head cold the balance
 and dizziness disorder came back BIG TIME!  has this happend to anyone
 else?  It is so frustrating.  life has changed so much...i miss my old
 self! respond back if you can and thanks!

It is now 6 1/2 mth since I ave been sick. Brain Fog,Imbalance,Memory
 lose,Nausea, allhave been my torment. Doctors seem unsure what to do.
 I have had all the tests,MRI still coming, and all tests Normal so far.
 Disability has cut me off. They dont like to pay on symptoms with no
 hard signs. I am on Zoloft now to satisfy the doctors that I am not
 making this up. Still no specific diagnosis.( Labyrinthitis is
 Posability)  I am tired of being

Note to Brian in Vancouver. I can empathize and sympathize with you! it
 is like a living hell. Especially when you appear "look" fine to others
 but you are suffering so inside!  Good luck.  if you get the mri, that
 might help.  I was really nervous about mine but it was fine.  i went
 through a series of tests since then -- all very anxiety-producing! the
 last one was a test where the hooked electrodes up to me to isolate my
 left ear -- then inserted something in my ear to make me really dizzy -

The more you get worked up about your problem, the worse it will get.  I
 was involved in a boating accident about 8 months ago.  The Doctors
 keep saying, here take this pill, do this exercise.  What good are they
 if I can't get my mental strength back!

May doctor gives me a "dizziness test" namely an ENG.  After the test he
 tells me, "it appears your having problems with dizziness!"  No kidding
 Sherlock, what gave you the first clue!  Just thought I'd share this
 story with you.

I had been going to Dr.'s for more than 3 months before I found a Dr.
 who specialized in balanced disorders,who then had me take a series of
 balance tests.  I had an ENG,which showed that I have damage to my
 right inner ear,cause by a virus I once had.  Before I even had gone
 for the testing I had been going to Vestibular Rehabilitation
 (w/physical Therapy) which slowly,but surely is helping,but I still
 wake up every day dizzy and go to bed dizzy...There are also other

I have been going through so much pain with my Vestibular Disorder. I
 have damage in my right inner ear, witch was diagnosed after ENG
 testing.  It took me over three months to even find a Dr. who took me
 seriously.  I get symptoms such as dizziness/nausea/loss of
 concentration,etc. It is hard to deal with this when people are not
 understanding what you are going through,but you have to understand
 too. Please e-mail to talk about what we are going through thanks!

I have been going through so much pain with my Vestibular Disorder. I
 have damage in my right inner ear, witch was diagnosed after ENG
 testing.  It took me over three months to even find a Dr. who took me
 seriously.  I get symptoms such as dizziness/nausea/loss of
 concentration,etc. It is hard to deal with this when people are not
 understanding what you are going through,but you have to understand
 too. Please e-mail to talk about what we are going through thanks!

I have an inner ear disorder caused by a virus. This was diagnosed after
 ENG testing,given by a specialist in vestibular disorders. I have
 symptoms such as dizziness/nausea/loss of concentration etc. It is hard
 when Dr.'s do not take you seriously, and people in your life are not
 understanding what you are feeling. I would love to talk to someone
 that is going through the same thing as me.  We can discuss our
 treatments,advice anything. Please E-mail me thanks!

Sorry it posted so many times, I didn't mean for it too, America OnLine,
 said my message did not go through, so I kept doing it again,but
 apparently it did work. So,now there are about 5 messages from me...I
 am sorry for the inconvenience, and I hope someone can relate to me
 story!-Please E-mail me!

can definitely relate to what Lauren is going through!!  has anyone had
 any success with valium?  I've been taking that now at night before I
 go to bed -- although it doesn't help all the time it has been the only
 medication that even makes a dent in helping my symptoms.  Any other
 good coping techniques would be appreciated.  take care!

Hello, I ve lived with dizziness for 3 1/2 years. I ve done all the
 tests and they still can t pin pointed it. I ve noticed that my
 problems  are due to the weather changes and and air pressures.Right
 now I am  taking BONAMINE and it puts me to sleep,but in the passed I
 ve taken  a pill called SERC. It knocks you out.

What a relief to see that I am not crazy. I just returned from Vegas 7
 weeks ago and I feel like I am constantly moving like I am still on the
 plane. I have been in to the ENT doctor, he says I have Persistant Mal
 De Debarquement Syndrome. Anyone know much about this?This is the
 second time I got this. Please e-mail me with info.Follfam@aol.com

I was in a car accident in april of 98.  I had a concussion and severe
 cervical and lumbar strain, resulting in severe headaches and
 dizziness.  Today I was informed that I had "inner ear trauma" and I
 need vestibular rehab.  I'm so tired of being dizzy and I'm so afaid
 that it will never end.  I have four children who need me.  Does this
 therapy REALLY work?

Hi, rapt to find others sharing vertigo with me.  Vertigo upon waking,
 getting out of bed, early morning, getting in touch with feelings,
 sudden movements.Do others find anxiety/stress/tension seem to aggravat
 the problem? Life has definitely changed, grieving for my old self.
 Very distressing coping with what's happening.Work folk being
 supportive.  Please email me if you relate - share
 therapies/treatments, etc.

Ak Spittel, I have horrible dizziness as well.  I an inner ear damage in
 my right inner ear...I have been going to Vestibular Therapy (Rehab)
 and little by little it is helping...It is a small difference so far,
 so it is hard to notice, but it used to be hard for me to go in a car,
 but now it is getting much better!  If you would like to e-mail do not
 hesitate!  If you want to know anything at all just ask...you can e-
 mail or post!

I have been seeing lots of people use a drug called SERC. What is it and
 how does it help you? Also what is this ENG test? I would like to know.
 Thanks.

I have been seeing lots of people use a drug called SERC. What is it and
 how does it help you? Also what is this ENG test? I would like to know.
 Thanks.

I also was involved in a boating accident.  I was told I have post
 traunatic vestibular disorder.  Doc says, go to therapy.  Takes time to
 heal.  yeah okay, 7 months!!  I'll just keep taking meclizine, and try
 to keep good spritits. Best wishes to all.

its nice to see that i am not going crazy.  i feel like i am floating!
 especially in the mornings.  plus sometimes my head feels so cloudy.
 it just on once day.  my doctor said i probably have bpv.  told me to
 do head tilts and gave me meclizine.  it is not helping.  will it ever
 go away?  i just want to feel normal again.  does anyone have any
 advice?  please email me.

Its me again.  Just went and seen the doctor.  he told me to increase my
 intake of meclizine.  These Doctors seeem like there answers to
 everything, are take more medecine!!  Good luck everyone, and hope to
 talk to you soon

I thought I was going crazy, then I found this page.  It's nice to know
 that I'm not alone. I've had 2 mri's, ct scans, xrays, eng, eeg..you
 name it, they all produced dizziness..laying flat will do that.  My eng
 made me throw up and pass out..great. I only work part time and I'm
 probably going to have to quit.Sleep seems to be my only get away.
 Between the Remeron(antidepressent) miclazine, and feorstat for the
 migraines I'm so wiped out. I just needed to vent..thanks!!

I was in an accident back in 1968. had a bad head injury. for the last
 15 yrs or so I started having these dizzy spells, feeling like i was
 really out of it!! the doctors treated me for sinus, vertigo and i
 would have these spells every so often.now i'm having them EVERY
 DAY!!!! I'm talking xanax and it seem to help a little but I want to
 feel normal again!!!!!!!!!!!

I don't know if my message appeared the first time I wrote. I just feel
 like I'm in "LA LA LAND" ALL the time!!!!!!!!!!! I want to feel normal
 again : (  had a bad car accident and the neurologist said that was the
 reason I am feeling like this but everyday?????????? taking xanax and
 seems to help

    I am having vestibular disorder for nearly 11 yrs now.Try taking the
 following drugs.Combine Stugeron 25mg(Anti Vertigo Drug) with Lexotan
 3mg(Anit Anxiety Drug) and neuro forte vitamins.These has helped me a
 great deal.My imbalance has improved alot since having very bad attacks
 .Futhermore have patience.It take alot of time to improve.Thats what my
 doctor  said.Email me if you need any informations on these at
 sada@pacific.net.sg

VERTIGO FOR 2YRS 9 MONTHS. TRYING TO LEAD A NORMAL LIFE IS MAJOR
 STRUGGLE. I BELIEVE I'V TRIED EVERYTHING.HAS ANYONE TRIED VERTIGOHEEL .
 PLEASE GIVE ME ANY FEEDBACK. THANKS AND GOOD LUCK RALPH

Lauren, thanks, I start Vestibular rehab on Thurs.  I sure hope it helps
 me!! I just don't know how I'm going to live the rest of my life like
 this, especially since this seems to be caused by some idiot driving to
 fast and slaming into the back of my car at 60mph. I have such a hard
 time getting and then keeping my thoughts together. I'm so relieved to
 find people who can relate.I know my family is trying to understand,
 but until you walk in our shoes....

Want to talk with anyone with chronic diseqiulibrium and drunk type
 feeling. Have had this for over 3 years!  Helps to know as much as you
 can. I  Get a different diagnosis every specialist! Has anyone found
 anything that helps? Vestibular rehab helped immensely but still stuck
 with chronic disequilibrium!   Had a severe boat feeling 2 summers ago,
 lasted about 6 weeks. Was a living nitemare! Had major vertigo spell
 lasting approx 36 hrs , then back to old disequlibrium. Believe it's

Hi. Have been suffering from severe dizziness for over 3 years now.
 Neurologist, ENT, and GP don't know what to do.  My ENG was normal. I
 am taking allergy medicine, but it just isn't going away.  Have an
 appt. with an PT..hoping that will help.  It all feels like it is in my
 right ear.  THe dizziness can range from 1 hour to days.  Dramamine is
 the only thing that helps.  Any suggestions?  PLEASE!  I am miserable.
 Thanks.

I hope someone can help me.  My mother suffers from vertigo, starting
 approximately 1 year ago.  She has had MRI's, MRA's, ENT exams.  She
 was recently diagnosed with a totally blocked carotid artery, but they
 say this doesn't contribute much.  She has tinnitus, then violent bouts
 of vertigo and vomitting.  She's such an active young  76 year old and
 this has kept her miserable and homebound.  Does anyone know of
 anything that can help her.  Thank you,  Robin

went to the doc today and he told me I have panic attacks..put me on
 anti depressant, xanax and going to a counselor to learn how to deal
 with my problem. Hope this works!!!!

I've continued to have sucess with the Afrin Nasal spray. When ever I
 feel dizzy enough that I feel a vertigo attack coming on I use it and
 so far have avoided any spells. Of course I can't use it all the time
 and the Flonase really helps to counter the side effects of the Afrin.
 Went to the neurologist and he said I had Menieres' Disease, ( Duh).
 So much for that. Please e-mail me with any questions or any remedies
 you've discovered.

Its me again, just had another bad couple of days.  Doctor says, "Timmy,
 give it time."  Okay Doc, but I want my life back.  I can't work right
 now because I look like I'm intoxicated half the time.  Pressure on
 thick, and I sometimes feel useless.  See you guys, I pray for you all.

Hey Tim, If you were in an accident and then the dizziness started I
 would go see a chiropractor, you could have knocked something out of
 place it cannot hurt to try.  Try everything you can until something
 works!!!

My off-balance feelings, fuzzy-headedness, started on a cruise I took
 last month.  Just had an MRI today, and was very apprehensive until I
 found this page.  Glad to hear the encouragement from those of you who
 are able to just keep on.  Would especially like to hear from those
 whose Christian faith is a source of strength.

When is a good time to find people in the chat room?  I've tried several
 times and no one else was there.

HELP!! i took the anti depressant last night and woke up feeling very
 shaky and VERY anxious!!! I've felt this way all day like I was losing
 control. is anyone else on anti-depressant...mine is Effexor

I too have tried dizzy chat many times without company.  Will try to log
 on around 7p.m. mst daily if anyone is interested.

Just back from a business trip.Was generally ok for the whole duration
 with milder attacks of lightheadedness and dizzy sensations.Still on
 Xanax as the dr. don't know what else to give.It helps a little esp to
 reduce the fear and anxiety attacks accompanying the whole fiasco.My
 head feels foggy mostly and i feel lethargic.My fear is that the big
 attack will strike when i least expect it.As such,i constantly live in
 fear.Thanks to Mike and Billie for mail

There is hope people! I am feeling better, a lot better. Two years ago I
 woke up spinning in my bed. It came out of no where. I am 25 healthy
 and had no ear problems. After that May 1, morning I had been dizzy,
 off balance, and feeling like I just got off a ride Knots Berry Farm. I
 have had every test, MRI, ENG, ECt. any found no answers. I am happy to
 say I am getting better every week. I run every other day and do eye
 excerises. Dont give up I know how you feel.

I woke up one morning and it felt like I was still very groggy and
 couldn't balanc myself. During the day I feel very foggy and I am a
 little off balance.  If I turn my head real quick or hop up and down I
 become dizzy and a litte out of focus.  I went to my doctor and I took
 meclizine for two weeks but that mostly made me tired. I went to an ear
 doctor and he found nothing wrong with my ears. It is really
 frustrating and I would like to find a cure.  What I have doesn't sound

I woke up one morning and it felt like I was still very groggy and
 couldn't balanc myself. During the day I feel very foggy and I am a
 little off balance.  If I turn my head real quick or hop up and down I
 become dizzy and a litte out of focus.  I went to my doctor and I took
 meclizine for two weeks but that mostly made me tired. I went to an ear
 doctor and he found nothing wrong with my ears. It is really
 frustrating and I would like to find a cure.  What I have doesn't sound

The first time I had an "episode" I felt dizzy and then over several
 hours I became so weakened that I could barely lift my hand. Now when I
 get dizzy it seems to be preceded by a couple days of ear ticking and
 headache.  Along with that I get a tightening in my left leg and
 tingling bottom left foot.  Two years ago MRI was negative but ANA test
 was positive. Am beginning testing rounds again!Anyone else with these
 symptomes?

I have been having dizziness, imbalances and tinnitus (left ear)  and
 sometimes burning sensation in the ear since august 1996. All   tests
 are normal. I took lots of vertigo medicine (serc, stugeron)   and anti
 depressants. All made me drowsy. No improvement. Suddenly   in August
 1998 it became worst and I feel like walking on the moon.  Any
 suggestions....

I have resently sean a movie called GO NOW!..And it can helpyour family
 and friends understand what we go through.  All though it has to do
 with M.S. I can relate, and many of you can too.  The person just above
 me will see that many of her symptoms are just like M.S and I think she
 should check this out.

I asked a pharmacist about vertigo and he gave me something that is like
 antivert..it is called...BONINE..I think it helps me. I'm keeping my
 fingers crossed. I go to a pshycotherapist now

Hi,  I,too,have gone to the chat room numerous times in 1998 and tonight
 is the second time in 1999.  I will keep trying and hopefully one day
 some of us will get together for a chat.    I have had BPV for 14
 years. It has gotten better and I think my other senses in my body have
 compensated for it and I learned to live with it.I still have times
 when I feel I am swaying on a bus or walking on a boat. It does effect
 every aspect of my life.

I've been having dizzy spells for the past three days and they are
 getting worse.   Does anyone have any suggestions for me, to help me
 get though them.

For those who have tried the chat room and found themselves alone, let's
 change that. We need each other. It is difficult to get online on the
 weekends for those of us with AOL so perhaps we can all plan to chat on
 Monday nights at 8:00pm (est) for example. Please reply so we can look
 for each other on a specific night.

i have bppv and have had several treatments feel better for a while than
 dizziness comes back i don't know what else to do if you can help me
 please e-mail any suggestion's would be appreciated....

rfaye@erols.com - I ahave been experiencing some lightheadedness since
 childhood. I had a true episode of vertigo 13 years ago. I was sleeping
 on my stomach and snapped my head back suddenly and the room began to
 spin rapidly. Also associated were episodes of tunnel vision and
 darkening of vision wih my head turned to the left. Please contact me
 withthe names of doctors and treatments.

I've had dizzyness problems for over 3 months now. Went to a ENT
 specialist for hearing and balance tests. He said the vestibular system
 was fine and recommended an MRI. I found the VEDA website and my
 symptoms all fit either a perilymph fistula or Mal de
 Debarquement(MDD).The constant rocking or swaying motion came on after
 a trip to Europe-I was fine when I boarded the plane, dizzy when I got
 off and it is constant.There is a website for MDD for others with same

My problem started with ear pain, practice doctor said ear infection
 specialist said no infection, then  I had vertigo, had vibration
 therapy it worked. But dizziness continued then I my right eye became
 sensitive to light, nerve problems..ect went to see James Atkins  had
 computerized test on right ear. Permanent damage on inner ear.
 Drinking Xanax twice a day, eye & Positioning therapy and phenergan
 before bed time are helping slowly. I'm very depress, diferrent person

Has anyone ever heard of someone having a vestibular disorder and
 recovering 100%?  We all need some encouraging news from somewhere.
 Also, please sign on to the dizzy chat room every evening at 8:00 pm
 eastern time.

i ve had vertigo on and off for five years now  drs seem to know nothing
 and offer no help  the first time i tried zoloft and after 5 days it
 had gone completly im back on zoloft hoping it will go again  i to had
 every test under the sun ,making my husband understand this problem is
 the hardest thing , im a full time musian and im finding it hard to go
 to work. pannick attacks ect.but at least i now know i'm not crazy
 .after hearing all of you talk about your experiences . no more boating

Hi there!Just found this board. I have Chronic Vestibular Neuritis.
 Would like any info from anyone who has had the nerve section done and
 what success.

ok. when i wake up i am lightheaded and dizzy... and often i get  very
 dizzy, weak and nauseous... often when i am shopping or    after
 walking a while or when i get up in the morning... the nausea, weakness
 and dizziness  gets really bad when i am even only 1 hour late in
 eating a meal.  i don't know  if this is an inner ear thing or a blood
 sugar thing. i passed out once and   they did full blood work and came
 up with "you should stand up more slowly"  anyone experience anything

I have had vertigo for about 15 years now. It started out with just
 happening once in awhile. But lately it is getting almost intolerable.I
 am on 5mg of valium during the day and 10mg at night, Helps a little
 but not much. I have had all kinds of tests and they only found a
 slight abnormality in my left ear but not enough to cause the kind of
 dizzieness that I have (it's constant with severe spells daily). Having
 to sell my Harley, can't ride anymore,it sucks!!

Hi to all,  My heart goes out to all of you who have dizziness and
 balance disorders.  I understand what it's like.  My symptoms  began
 about 10 years ago.  It's a long story - but after a   very
 discouraging period of time, I'm doing a lot better  these days.
 Please feel free to e-mail me if you wish to  "talk" about your
 dizziness/coping problems.  Thanks -- Randy

Hi...A letter writing campaign has begun on AOL to members of congress
 in hopes of bringing recognition and in hopes of getting funding for
 research. I have all the email addrs. for all state senators so you can
 send a letter out If you would like to join in please email me and I
 will send the addresses to you. Patrice

CURED MY VERTIGO  My vertigo was bad enough, but gave me a day's warning
 and lasted about 6 days once every few years. The weekly,
 instantaneous, 100% debilitating, slammed-to-the-ground drop attacks,
 though, were a different animal. No more work, play, or driving. Screw
 that! Had the offending inner ear dug out of there (labyrinthectomy)
 and went windsurfing in 30 knots of wind 13 days later.

hi all.  I've had BPPV for 5 years (took 4 years to diagnose).  Just
 started taking homeopathic med- Vertigoheel.  no results yet, may have
 to increase dose.  I found the book- Phobia free very helpful in
 explaining connection between phobias, anxiety and inner ear disorders.
 must read for all.  my best advice is to keep the faith and never give
 up looking for the cure.

Recently read that vertigo can be a side-affect of aspartame so I   gave
 up all diet sodas and have found much relief. Vertigo returns   with
 full force whenever I catch a stomach bug or flu. My dr wants   me to
 stay on meclazine constantly, but I'mn loathe to take pills   for that
 long.  It definately doesn't work when taken short-term   for vertigo
 attacks.  Any suggestions would be much appreciated.

I have inner ear damage due to perilymph leaks to both ears which
 occurred during childbirth 19yrs ago.The main symptom of this is
 increased dizziness on exertion.I have had grafts to the leaks however
 there is permanent damage.Vestibular Rehab.has been suggested.It looks
 very difficult.Has any one out there tried this with success.How long
 did it take to see a improvement and how did you cope?

I've had cruise vertigo for 4 months.  Nothing worked until I read the
 suggestions in GNC's reference book for various health problems.  I now
 take niacin, vitamin b complex and gingkoba liquid extract every day.
 It really helps.  The book says all 3 increase  oxygen to the brain.
 The combination really seems to work.  I hardly notice the symptoms
 anymore.

........mitral valve prolapse???   Has anyone else had this diagnosis?
 I've had MVP for 20 years, but began my dizzy experiences a few months
 ago.  A beta blocker seems to have lessened the severity, but not the
 frequency of the problems.  I was introduced to this website by my
 sister, who is a VN patient.  I have no idea if this is related, but
 inner ear has been ruled out.  Would welcome any info -

I've been "dealing" with BPPV for 10 years now.  Went to every doctor
 you can imagine.  Was told everything from "You're too pretty to worry
 about this", "You have a brain tumor.  I want to admit you today." to
 "Your walking, isn't that good enough?"  Doctors are not very
 sympathetic when they don't have an answer.  I was also told it would
 go away the same way it came on.  I'm still waiting.

does this vertigo ever go away on it's own? I take meclazine the doseage
 has been increased now it takes more meclazie to work also what does
 afrin do for you I see some people use it  what about driving? I know
 of no one else who suffers from this problem I look healthy but my head
 says anotherthing I feel people don't understand I didn't chose this it
 chose me is it a family thing?

Have been experiencing vertigo attacks off and on for the last five
 years.  Recently the attacks have gotten worse in their frequency.
 They last for hours   and the only relief is to go home and head to
 bed.  My family and friends  think just because I look good I am not
 sick.  Hopefully I can find a   doctor someday who can figure out why
 this happens.  Have been prescribed  meclizine but it only helps a
 little and makes me too sleepy to use  as a regular med.  I don't feel

Just found this site and I think its great to meet people who know what
 I'm going through with these episodes of dizziness.  I've had it for
 about 20 years, with sporadic spells lasting for about 3 days each.
 This past episode got me especially worried because i was staggering at
 times and double stepping.  I take meclizine and it didn't seem to
 help.  I i hate the tiredness,irritibility, the fogginess, and
 squinting to try to focus.

I too have been suffering with vertigo and tinnitus (I guess).  Most
 Drs. don't have a clue.  Therapy helps a little, chiropractor helps a
 little, but no cure.  I would like to hear from others in their search
 for relief.  My symptoms got worse after someone hit us from behind
 almost 3 years ago.  I believe I had some slight symptoms after a head
 injury as a child.   Also had ear infections as a child. My reprieve
 did not last forever.  E-mail.  I will also try chat.

To all suffering from Peripheral disorders,  I am a master's physical
 therapy student researching cognitive problems associated with
 peripheral vestibular disorders.  Many  of you complain of memory
 problems, loss of concentration,foggy headedness, etc.  My research
 group is curious if there is  a specific area of cognitive problems-ie.
 math skill, perceptual skills, verbal, etc. that you have found that
 you have difficulty  with.  We would love to hear from you. Thanks,

I have dizziness Dr.s have called it vertigo,BPPV,Vestibular
 Hypofunction,Vestibular abnormality ect.It started after a very bad
 case of ear infection that drained out my ears and also infected my
 lymphgland on my neck .I was in Army training 1979.They did surgery and
 treated the infection. Eversince I have had this spinninng dizziness at
 any time. I hate to go shopping because it always happens down the
 isles .or any time when I turn or lay ect..If someone wants to write

Had a vertigo attack last night. Took all my medications: Afrin,
 benydril, tylenol, antivert. Didn't get sick and only lasted two hours.
 It seems that the last two attacks have come on when I have gone
 without eating for a long time. Anybody else experiance the same thing?
 The only other simularity was the time before last I had used
 aftershave and the last one I was working on a carbuerator (gas). Can
 Aeromatics trigger attacks?

I'm taking allergy shots now and exercising every day!!! My dizziness
 has nearly gone away!!!!! allergic to ALL kinds of  trees and ALL kinds
 of grass!!!!

I'm signing on after 7 months of dizziness, sinusitis, balance problems
 and foggy thinking.  I'm curious to know if anyone has found any
 "coping" methods to deal with "foggy thinking".  So far the only thing
 that seems to work for me is to stick to very light meals throughout
 the work day (fruit, salad, etc.).  The pounds are falling off - but it
 seems to keep the fog at bay.  If anyone has noticed a similar
 correlation, I'd like to hear about it.  Jim

BPPV IS CURABLE IN 48 HOURS  Some physical therapists do nothing but put
 patients through the Canalith Repositioning Maneuver, which cures the
 vast majority of BPPV cases permanently in 48 hours. A few ENTs also do
 it. My PT learned it at Univ of Tex (UT)/Dallas. You might see whether
 they have a web site. And CHANGE ENTS if yours doesn't know about this.
 That's all I know; mt BPPV turned out to be Meniere's Disease.

Woke up dizzy 12 weeks ago, seen 8-9 Drs. all say just vertigo.   Feel
 like I'm on boat all day. Found amazing chiro who does
 nonforce/nontraditional treatment, I was shocked after 1st visit
 dizziness improved 50-60%, had 2nd treatment 2 days ago, still   more
 improvement. Still have a few sypmtoms but SO MUCH BETTER!!!   Dawn S.

In October of '98 I began a series of very scary symptoms. One morning I
 rose from bed and as if gravity acted alone, I was pulled  back on my
 left side plastered to the bed. After several attempts I got up and
 this repeated several times. Then after rising one morning I got up,
 was dizzy, but this time I had every classic symptom of stroke. I
 called my doctor, was told to go to ER asap. I did. Nothing found.
 Repeated next day, back to ER. Admitted to hospital. Nothing. It was

i have suffered with autoimmune inner ear disease for 4 years. the first
 symptom was an attack of vertigo with bilateral deafness and loss of
 vestibular function following.  have been treated with   steroids and
 imuran, anyone else out there living with this hell?

I have been dealing with Meniere's for the last 4 years.   It is usually
 preceded by really intense ringing in both ears.  I have been to see
 quite a few doctors and they all tell me that I am healthy.  The
 attacks I get (when I get them) are far worse than when they started
 and I am out for a week at a time.     Antivert doesn't cut it anymore,
 Valium is about the only thing that can really stop it.      I have
 found some remedies that really, really help though: one of my doctors

I'm a 33 year old female and I guess I just need some support and
 information.  It's quite frightening, as I never know when this is
 going to happen.In the past 3 weeks I have had 3 bouts of extreme
 dizzyness (not being ble to walk, or stand up without falling to the
 floor or into a wall), intense and constant nausea, vomiting, shaking
 and not being able to walk.  It was the sickest I have ever been in my
 life.  They last for about 4 hours, HELP!

Everyone suffering from meniere's should go to the meniere's home page
 site.  There is a forum there at
 www.geocities.com/HotSprings/Spa/3143/Support.htm#Support  where people
 actually share their experiences and answer your questions very
 quickly.  There is a WORKING chat room. It is a great group of helpful
 people who are all going through the same hell together.  Good luck to
 everyone

Have had 2 lingering attacks of vertigo, each after flying. Spaciness,
 difficulty concentrating, etc.  ENT found a vestibular weakness &
 prescribed rehab, but my PT couldn't produce any dizziness &
 recommended a neurologist. My primary Dr. prescribed Lorazepam which
 helps a lot (had to cut the pill in half).  Caffeine definitely makes
 symptoms worse.  In 4 weeks I'm flying to China . . . we'll see what
 happens.

I have now had my EEG after 8 months of balance problems and Pressure
 haeadaches.  My speech has also been efected.  My reasearch has showen
 me that many of you may have had a Viral Encephalitis of the Brain.  It
 is worth while checking this out, as all my tests except the EEG showed
 this.  I only hope I wil not be like this for ever.  My answere is
 this, don't just take what they say as fact. Do research your self, it
 will give you peace of mind.

I was diagnosed in the UK & Canada with a virus-caused vestibular
 neuritis in Oct 98. I am still floating today in Houston. Does anyone
 know an understanding specialist here who can help with coping
 strategies? Is there a support group in Houston?

My vertigo began 4 years ago. It lasts 4-6 wks. Symptoms of dizziness,
 confusion, I feel like a magnet is pulling me to the right, fogginess
 and disoriented. It is very difficult to teach.  ENG with no success.
 No medicines have helped.  Will start on a small dose of valium next
 time.  Supportive family and a God who helps me through it all.  God
 Bless each of you!

After 8 years of phobias of bridges,heights,flying-  I have all the
 symptoms of an inner ear disorder.  Anyone ever visit Dr. Harold
 Levinson in NYC? Claims  to have specific medication which helps
 greatly.  Feel free to write for any reason. FYI - phobias  suck -
 excuse my French.

It all began for me in January 98 a few dizzy spells then one morning
 vomiting &violent spinning.Hospital visit said benign vertigo.A week
 later an ent found my BP was very high. Was on & off BP pills , went
 for eng,mri,etc. now seeing chiro! Anyone like to talk? write or e-mail
 thanx Mark

Yes Labyrinthitis could be it but don't discount a Viral Encephalitis.
 Have your doctor give you a EEG, you may be surprized to find out you
 have had a virul infection to the brain causeing all of your symptoms.
 This is a swelling of the Brain, and causes problems with the Niron
 recepters in your brain that control Balance.  I had all the teasts But
 the EEG was the only one that said I was not NUTS.  9 months and it
 could be years with this thing because of perminant damage to my Brain.

My grandmother had severe Vertigo, I have had 2 episodes 3 years apart,
 the first was before my wedding and now when I am purchasing a house
 (stress related???).  My mother (retired nurse)keeps pressing that it
 has to do with dehydration (which could go back to the stress not
 taking care of myself)and when I start drinking lots of water my
 symtoms lessen.  Best Wishes to all and hope the water solution helps.

Just found out I have Vertigo?  Is their a natural substance that people
 with vertigo can take?  .

Been dizzy 4 years and dr.s told me the whole gammet of diagnoses, but
 none were right.None of the treatments worked either.I think I have
 accidentally stumbled on to my problem.Seems when I have milk or ice-
 cream I get very dizzy afew hours later and stay that way for hours.  I
 am going to look to an allergest as one of you have suggested.

Been dizzy 4 years and dr.s told me the whole gammet of diagnoses, but
 none were right.None of the treatments worked either.I think I have
 accidentally stumbled on to my problem.Seems when I have milk or ice-
 cream I get very dizzy afew hours later and stay that way for hours.  I
 am going to look to an allergest as one of you have suggested.

I've got Meniere's and am planning a 12-hour airplane flight in May.
 Has anyone had experience with flying with Meniere's? Does the
 vertigo get worse when you fly? If yes, how much worse? Have you
 found ways to prevent it during or after a flight?

Constant pressure in right ear.Currently taking meclizine and
 promethazine.  Seems to help with dizziness and nausea. Diagnosed with
 meniers--any other suggestions for coping?

I have had vestibular trouble for about 2 years now. It has been called
 bilateral reduced vestibular function.  But no doctor or homeopathic
 practicioner has been able to help. My twomost notable symptoms are
 oscilopsia and general imbalance.  My oscilopsia (bouncy vision) hjas
 gotten so bad that I can hardly drive a car anymore. I tried Cawthorne
 exercies formonths - no relief. I have had no success with the medical
 people where I am at. They seem to be able to identify my problem ( had

Hi again. Been coping with this imbalance problem for 15 months now.I
 thought my chiro was helping, but maybe I just like the fact that she's
 simpathetic and listens to my complaints. This past few days I've been
 expierencing a great deal of imbalance & dizzy-lightheaded sensations
 especially while walking.Two things worth mentioning:1st. I sprained my
 left shoulder,& 2nd. I've felt kind of congested not just between my
 eyes , but near my temples does anyone else expierence this? My doctor

My doctor says sinusitus does not cause dizzyness.Always looking for
 input please write or e-mail. Lets try to jumpstart the chat room, say
 evenings after 8PM? Good luck to all!!!!!!!!!!!!

I'm encouraged that I'm not alone. At 36 yrs. I've been panicking that
 I'm too young for this (started 2 yr. ago), and need to care for a
 small child. 2 yrs. ago was hit with a 48 hr. vertigo episode.  Thought
 I'd go insane!  Happened on and off for 1-1/2 yrs. and finally told
 that I had positional vertigo; excercises worked.  Just got a cold and
 was slammed with a major vertigo (spinning) attack. Meclizine helped.
 I'm determined to find cure!!  I hate this!!!

Anyone in England?? Please contact me.

Some great websites for people to check out for advice and support and
 general info  www.meniere's.org  and www.ent.utmem.edu

Has anyone had success with sinus surgery/removal of polyps in
 eliminating lightheadedness/nausea symptoms?  Please e-mail me.

Have had true room spinning vertigo off and on 4 last 7+ yrs.Usually get
 it from straining back of my neck, feel it when i lie down or rise from
 lying.  Yesterday, I got it FULL BLOWN for the first time while
 standing up, Had ENT and neuro work up a couple of years ago.  Hate the
 though of all that again.  Am afraid to drive now that it happened
 while standing.  Almost fell over when it happened, total body sweat
 afterward, felt pretty shook up.  HELP, Kate

My name is Muneer from Dhahran, Saudi Arabia, I have Vertig or Dizziness
 problem for the last two years, all doctors are saying it is not
 serious and it will go away ! it did not for two years, on and off
 every 2-3 months. Do you know of any center that can further daignoze
 and provide real help ?

Hi everyone,    My name is Linda and I'm the creator of this Web site.
 I'm just doing a quick check to find out   how many of you have
 received e-mail from others by   posting a message to this page.  Have
 you found this   bulletin board to be helpful?  Have other people
 responded to  your messages here?  Would love your input!  Thanks...

Does anyone have stopped up ears associated with vertigo?I found that  a
 good sleep pattern helps with the dizziness.When I sleep well,I'm less
 likley to have vertigo.Went to the doctor-he said 6% hearing loss in
 left ear.  Stated vertigo will cease in about 90 days,that was 2 years
 ago,still  the same.

I am a 48 year old male that has suffered from vertigo for 4 years.   My
 symptoms are dark periphial vision, memory loss, speach loss,
 inability to focus(Mentally and visualy.The foggy sensation is the
 worst. I am ver high strung and sensitive to light and noise during
 my episodes. Predisone is the only drug that works to date. Drug side
 effects are:inability to sleep,hyperactivity, fast heart beat.  Each
 11 day treatment of decending doses works well.

Anyone else with autoimmune inner ear disorder?   Would like to know if
 anyone has had success with combination   of prednisone and imuran or
 cytoxin?  Those drugs scare me but going   deaf does too!  Do those
 drugs help with dizzyness and balance?

I too have been diagnosed with vestibular neuritis.  I am on Lorazapam
 and Nortriptyline. I am not having the best results, I am only working
 half days and it is disrupting my life.  I have imbalance, migrane
 headaches, sore neck, some dizziness and confusion.  Does anyone have
 any good advice?  I see my Dr. on Tuesday and I am going to ask him to
 change my meds.  Thanks.

For those of you who do not have a diagnosis, be sure that your Dr.
 eliminated the possibility of a virus called "Giardiasis" (Beaver
 Fever).  My friend exhibited symptoms (for two years before being
 diagnose) dizziness, hearing loss, nausea, loss of concentration,
 etc..., had to quit work and this parasite was the cause.  This is a
 parasite with serious complications and needs to be ruled out as a
 cause.  Ask your Dr. for further details.  Please check into it!

I was diagnosed with Meniere's in 1997 and have had 2 real bad bouts  of
 dizziness and vomitting. Does any know of a support group in the
 Dallas, Tx. area. Any info on medications that help might help, please
 e-mail me lbl745@airmail.net.

I had sinus surgery on May 26, 94--aggressive surgery that, according
 to 3 other E.N.Ts., was unnecessary. In addition to the in-  sufferable
 pain I experience from medical neglgence, I developed   dibilitating
 balance problems shorthly after the surgery. I've tried   every
 treatment to no avail; diagnostic tests, M.R.I, CT, ENG, reveal
 nothing. Can't drive anymore. Has anyone succeded in getting SSI,
 Disibility for balance disorders.  Please email me!  Thanks! Craig.

Ditto...have had major vertigo episodes and general imbalance since last
 May.  Have seen ENT (audiogram, MRI) and dentist to rule out serious
 disease, etc.  Chiropractic has helped immensely with the general
 dizziness. (Relief within hours of first session) Continue to have
 ringing in ears, but I'm cautiously optimistic re: vertigo...has anyone
 else found relief with chiropractic?? And for how long???

I've been suffering from periodic episodes of dizziness for more than 15
 years. Doctors have told me many different things, but I am going to be
 tested for Meniere's Disease next month. My symptoms sound different
 than others, however. Once or twice a year, often connected to spring
 or fall, I get dizziness in varying degrees but no nausea. I had to
 take this week off from work. Doctor described Meclizine but it just
 makes me tired and doesn't seem to work. Any ideas?    Some PA told me

I've been suffering from periodic episodes of dizziness for more than 15
 years. Doctors have told me many different things, but I am going to be
 tested for Meniere's Disease next month. My symptoms sound different
 than others, however. Once or twice a year, often connected to spring
 or fall, I get dizziness in varying degrees but no nausea. I had to
 take this week off from work. Doctor described Meclizine but it just
 makes me tired and doesn't seem to work. Any ideas?    Some PA told me

I've had episodes of dizziness for more than 15 years_usually once or
 twice a year, usually in spring or the fall. I'm being checked for
 Meniere's Disease next month, but my case seems different. No nausea.
 Sometimes it last for a couple of weeks or a couple of days. doctor
 prescribed Meclizine but it doesn't seem to work. A PA once suggested
 gargling with salt. Today's doctor laughed at it, but I think it
 shortens the term. Any other ideas?

Hey everyone, have had dizziness and ringing in ears most of my life,
 have just started checking it out(28 years later) does anyone else have
 visual migraines with Vertigo and Tinnitis?  I have been diagnosed with
 these so far. Would like to hear from anyone with ideas.

Hello. I've had dizziness problems for the past few months.   Has anyone
 else experienced a clicking or popping sound in the ears   when
 swalling yawning, etc. as a symptom? Please e-mail me if you have
 and/or that helped with diagnoses...

 I too have been suffering from  debilitating "off balanceness" for
 years. Have had ALL the test and they come up negative.. But I do find
 the Chiroprator helps tremendously. No  it doesnt dissappear altogether
 but  it does help ease the syptems greatly, makes life alot more
 bareable..Last year was going 2x a week, now once a month and getting
 same benefit..  THIS IS A GREAT SITE... good luck to all

Hi everyone...my dizziness started last week and lasts for about 5-6
 hours at a time... doctor prescribed meclizine it has nopt done much to
 help..i have no health insurance and am scared to death ....i saw that
 someone said to try afrin and i did..it seems to have heleped a little
 or maby it's the wine ...i figured if i felt buzzed i might as well be
 buzzed anyone have any suggestions.............

Does anyone have a problem with an almost instantaneous onset of
 sweating, followed by nausea about 3 seconds after an aircraft rotates
 (on takeoff)?  The trigger is a "sinking" feeling.  It happens on about
 2% of the legs I fly on.  I have looked into tubes in my ears,
 dramamine, now fistulas in one ear (its a guess which one).  My doctor
 doesn't know where to look next.  I have a list of notes to compare
 with another who has a similar problem.

i suffer also, and will be seeking treatment i am learning to deal  with
 it also.  I work on a job that requries looking the computer and
 wearing a head sat. i am 34 years old think this all started from a gum

Well, just back from another Dr. visit.  Once again, no answer.  Are all
 women told possible emotional problems if the Dr. can't figure out
 what's wrong.  Anyone dealing with the dizziness, spinning, lack of
 concentration, etc. knows it's not emotional.  Why don't the Dr.'s just
 understand that we are searching for an answer that will help us get
 back to our normal lives and selves!

My father has had Meniere's for several years.  Has had dexamethasone
 and streptomycin perfusion treatments with varied success with a
 physician in Tennessee.  We have now heard of a physician in Kentucky
 doing a treatment using gentamycin.  Does anyone know about this?

I was diagnosed with BPPV in summer of 94 due to spinning around in my
 chair at work.  I have been taking zoloft for depression and anxiety
 and now I am not on a rollercoaster any more.  Now the dizziness
 eposides only last for a day or two then goes away for a couple of
 months.  Does anyone else taking zoloft feels the same way!

I am a 32 yr. old female who awoke one morning 2 months ago and
 experienced 2 days of vertigo spins. Have been dizzy ever since, but no
 more vertigo.  Dr. diagnosed BPPV and did Canalith Repositioning
 yesterday.  We'll see.. I noticed that I have a great sensitivity to
 alcohol and feel like a raw nerve the next day after I drink even very
 moderate amounts since this all began.  Anyone else know what I mean?
 I am afraid to drink at all anymore when I go out.

Just a general note to all regarding Antivert/Meclizine. It is the most
 worthless medication listed in the PDR. Yet  doctors think it is some
 miracle drug vor vertigo because they don't  know how useless it is. At
 best it works for only motion sickness  experienced during travel.

Hi,    For the last 5 weeks, I've suffered tonsilitis, upper respiratory
 infection, Severe sinus infection.  Now, I feel OK, except for one, I
 am feeling dizzy all the time.  Could it be an ear infection?  Does
 anyone have the same problem.

symptoms:tinnitus,head rush,vertigo,nausea,fatigue,yawning,drymouth,
 hot flashes,clammy hands,suddenly cold,sweats,eyes focus ontwo
 different things,drop attacks,no warning,no headache,exhaustion,
 displaced feeling,no motor skills,slurred speach,paralyzed feeling,
 bruises easily,weakness,memory loss,pressure buildup in neck and
 spine,scratching back ofhead above brainstembefore and after attacks,
 tingling in feet andfingertips,nystagmus,pressure in chest enlarged

Got cut off.  Enlarged optic nerve. Docs are baffled. Need info badly.
 It is my 39  year old mother who has the spells. No meds have worked.
 Considering   Mayo clinic... any other suggestions? PLease help!
 Desparate!

 I am 48yrs old and I have been having dizzy spells,sometimes
 headaches,some fullness in ears,lightheadeness,memory loss,some
 spinning and feeling like I can't walk straight or falling over,mostly
 loss of balance. I've been to a ENT, had MRI the only thing that showed
 up was I had a abnormal vein on the right side of my head since birth.
 Can't get ans. from Dr.I take ativan and claritan, Sometimes I feel
 better, but it keeps coming back.

Help!  For the past week I have been having flashes of dizziness that
 have gotten steadly worse.  It feels like I am zipping out of
 conciousness for seconds and creates a ringing in the ears.  I have
 even felt my hand tingle on occassion.  Doc put me on medicine to help
 but so far no good.  Never experienced anything like this before.  This
 is driving me nuts though.  Comes in a series of 3 "Flashes.  Please
 email if you experience similar things.  JG

I had a viral inner ear infection 4 yrs ago with reeling & severe
 dizzyness.   I have had two episodes since then when getting overtired.
 Now have   poor balance most of time. Some people have posted that
 certain exercises have  helped them. Would appreciate it if they would
 post what the exercises are.   I believe the viral infection never
 leaves but is dormant until one   becomes overtired. I can't leave my
 e-mail address as my employer   would surly fire me if they knew of my

I had a viral inner ear infection 4 yrs ago with reeling & severe
 dizzyness.   I have had two episodes since then when getting overtired.
 Now have   poor balance most of time. Some people have posted that
 certain exercises have  helped them. Would appreciate it if they would
 post what the exercises are.   I believe the viral infection never
 leaves but is dormant until one   becomes overtired. I can't leave my
 e-mail address as my employer   would surly fire me if they knew of my

For the girl I met in the doctors office last Thursday that was really
 dizzy and gave you this web site, I should have given you my phone
 number so you could have let me know how you are please  e-mail me if
 you see this.

My dizzy problems started about 3 yrs ago when I had a bad sinus
 infection(I frequently get them), and has never completly gone away.  I
 was really sick from the vertigo attacks for about 2months.  I missed a
 lot of work and at the time was not sure if I would ever be able to go
 back.  The first doctor I saw mentioned Meniere's, the next told me it
 was stress and I should meditate.  Since then I have had 2 MRI's, 1
 ENG, various other tests, and have seen about 7 docs.

Cont' My ENG test showed an abnormality in my left inner ear, as did my
 MRI. I have tried meclazine and a few other drugs-none seem to work
 well.  The last physician I saw, suggested it could be a form of
 Menieres and suggested a low-salt diet.  Has anyone tried this?  My
 symtoms are not as bad as when they first showed up.  I try to get
 enough sleep,avoid excessive stress, and exercise.  Without sleep-I
 feel like I am walking on a boat. Any suggestions are welcome????????

I agree with you Vince...about the Meclizine. I talk to so many people
 that it does absolutely nothing for(yours truly included). Yet so many
 doctors think it is a wonder drug. I guess because it is a wonder, why
 they prescribe it.    If we don't help each other......who will?

Has anyone had any success with using marijuana for relief of the
 nausea and spinning?  I'm not sure if it's worth it or not but it
 seems to relieve my nausea symptoms. I have been unable to get my   ENT
 or Internist to take my dizziness seriously. I've had motion sickness
 all my life, but the last 10 or 15 years it has started as constant
 pressure  in left ear, dizzines, nausea,lack of balance, Presently on
 Tenormin(beta blocker)  and Prilosec.

Hi-I have been dizzy and off-balance for 17 years now.  I am very
 depressed once again as I have been off and on for those 17 years.  My
 life has no value any longer as I can't do any of the things I love to
 do.  Just walking is a struggle.  I NEED to talk to someone because
 right now all I want to do is die and the feeling scares me.  I went
 through a severe depression 17 years ago and I don't think I can pull
 myself out of the hole again-Someone please talk to me -Karen

Nothing else worked, I am a scuba diver.  Constant light headedness
 was my problem . ENTs all said no problem.  Finally went to a chiro
 practor trained in Chinese medicine.Oh yes its your stomach he   said,
 as the seasons change...he made adjustments and pulled on my   ear
 lobes.  Found a very painful point in my right inner thigh, adjusted
 it and whallah  ALL BETTER. Try chinese medicine!!  .  Worth a
 try!!!!!!!

Hi everyone, This is the first time I have found this site. Everthing
 sounds sadly familiar. I am getting ready for more testing in Dallas
 and hope to be improving soon. I do alot of research on Menieres
 disease and would be happy to share any info with fellow sufferers.
 Please feel free to E-mail me. Best wishes, Machen

Hi-Last night I whined-LOL-tonight I'll tell my symptoms-similar to all
 of yours-"Constant" off-balance feeling-eye movements cause dizziness-
 tinnitus-thomping in the ear-congested ears-stiff painful neck-
 sometimes severe nausea-other times not-spinning sometimes-ALWAYS feel
 disorientated-clumsy-memory loss-can't drive-can ride in a car very
 short periods by hanging on for dear-life-burning,congested eyes-lean
 to the left all the time-17 years of PURE agony-sucks-(excuse please)-

I was having a really bad day with dizziness and didn't want to take
 anymore Afrin so I took another Tavist-D even though it had only been
 6hrs since my last pill. My dizziness went away and I havn't had a
 dizzy spell for 5days now, after being dizzy every day since Nov. I
 haven't even had to take any Meclazine and am on the regular dosage of
 Tavist. I'm not suggesting that anybody else take a double dose, for my
 size it may be a normal (230lbs), but I did want to share this....

I did want to pass this along though, because I think it points that  in
 my case the latest attacks of vertigo and dizziness were triggered  by
 sinus or congestion. From reading the comments of everyone, I think
 it's obvious that there are many disorders getting catagorized as
 Meniers. Just keep plugging away at different things, because what
 works for one may not work for the other. And for those who's down on
 Meclazine, it keeps me from throwing up when I get vertigo. thank God

Hi everyone, I am 25 years old. I have been to many specialists over the
 years and still do not have a diagnosis. My symptoms are: frequent
 vertigo attacks, off balance all the time, fatigue..etc. I have done
 alot of research though and I think I probably have Meniere's Disease.
 I am currently on a medication called SERC....its supposed to help with
 vertigo. I shall see.....

Just found this site. It's comforting to know that your not alone.
 Woke up 5/1/82 to a bout of vertigo, only lasted a minute. Since then
 constant dysequilibrium, lightheadness, fatigue. Have had ALL the
 tests, ENG, EEG, MRI, CAT,BSER, all  negative. Only cause  ever given,
 viral infection of inner ear. Learned to live with it. Last night layed
 down to sleep and started having vertigo everytime I turned my head or
 changed positions. Slept sitting up which helped. This morning no

18 yrs ago  woke up to a bout of vertigo, lasted 1min then stopped.
 Since then constant dysequilibrium. lightheadness, fatigue. Periodic
 bouts of vertigo since. Had all the tests,ENG,EEG,MRI,CAT,BSER all
 negative. Drs. don't have opinion. Last night went to bed, everytime
 turned head or changed positions had vertigo. Slept sitting up which
 eliminated the vertigo. Any suggestions?

I can't believe I'm reading these messages from so many people with
 symptoms just like mine. I'm a 37-year old working mother who has  had
 bouts of vertigo that last from a couple of days to a week or two,
 followed by several more weeks of fatigue, wooziness, airheadedness,
 and depression. These spells occur about once a year, so I guess I'm
 luckier than many, but this is no picnic. Let's find a cure! How and
 who do we lobby to do this?

First timer here...so happy to see this site!  I've had bpv for the past
 2 years, off and on - currently ON and violently so. Mine started with
 an inner ear infection (1st symptom: I sat up and fell back down as
 though I had hit a wall. Very scary.), it now seems to come about if I
 get exhausted or a cold.  I go to a physical therapist who has been an
 ANGEL; she performs the Epley maneuever and I have to tell you, it has
 worked wonders for me!  If only it gave permanent results ...

 My first attack of Minere's was in January,1998.Subsequent attacks
 occurred in Feb.,Mar.,June,July,and Aug.,of 1998.Symptoms were typical
 :tinnitus,ear fullnes,severe vertigo,nausea,and hearing loss.Saw an
 ENT doctor in March,1998.Diagnosis made after exam,MRI,hearing tests.
 Doctor's conservative treatment was of no help.My wife suggested
 drinking plenty of water each day to see if the inner ear fluids could
 be affected.Not one attack since I strated this in September, 1998.

 My first attack of Minere's was in January,1998.Subsequent attacks
 occurred in Feb.,Mar.,June,July,and Aug.,of 1998.Symptoms were typical
 :tinnitus,ear fullnes,severe vertigo,nausea,and hearing loss.Saw an
 ENT doctor in March,1998.Diagnosis made after exam,MRI,hearing tests.
 Doctor's conservative treatment was of no help.My wife suggested
 drinking plenty of water each day to see if the inner ear fluids could
 be affected.Not one attack since I strated this in September, 1998.

My first attack of Minere's was in January,1998.Subsequent attacks
 occurred in Feb.,Mar.,June,July,and Aug.,of 1998.Symptoms were typical
 :tinnitus,ear fullness,severe vertigo,nausea,and hearing loss.Saw an
 ENT doctor in March,1998.Diagnosis made after exam,MRI,hearing tests.
 Doctor's conservative treatment was of no help.My wife suggested
 drinking plenty of water each day to see if the inner ear fluids could
 be affected.Not one attack since I started this in September, 1998.

Hello,  Iam 33yrs with Menieres.Had shunt surgery which did not work,and
 left me with no functional hearing, now I am  undergoing Gentamycin
 injections which seem to help. Please try a low salt diet and lots of
 water first!! Give it time to work.Unfortunately I did not give this
 time to work and wish I would have realized the importance of reducing
 salt to eliminate excess water which raises the fluid in the ear.

I am 27 years old and have BPPV.  The things that help are rest,
 avoiding alcohol, and limiting time in front of computer screens,
 florescents lights, etc.  I agree with those who say mezycline   does
 not work.  Xanax, however, has changed my life.  My advice is to find
 a doctor that will give you a combination of physical therapy and
 Xanax.

Does anyone know about a disorder called Disabling Positional Vertigo
 (DPV)?  Symptoms are similar to BPPV, but vertigo is not always
 followed by a position change.  It has to do with vascular compression
 of the 8th cranial nerve.  Post it if you know where I can find out
 more.  Thanks

I am 15 and I have had Vertigo fo almost five months.  I have had many
 tests. They have ruled out MS, tumor, and anything that has to do with
 the inner ear.  I am having my eyes tested and I am having an EEG.  I
 have been on Meclizine, Water pills, and steroids. I anyone can help it
 would be greatlry appreciated.  I am frustrated and it is affecting my
 whole life.

i'm living with a chronic instability after a unknown vestibular
 "accident" (two hours spinning) 16 months ago. i wake up out of order
 and sometimes i'm quite normal in the evening. I have a deep
 depression, avoid people, stopped working. It's a nightmare and
 sometimes I think to "give up". 16 months before i was a dynamic
 veterinarian and loved my children.  Anybody have a same experience? I
 need to talk .... CARPE DIEM

i'm living with a chronic instability after a unknown vestibular
 "accident" (two hours spinning) 16 months ago. i wake up out of order
 and sometimes i'm quite normal in the evening. I have a deep
 depression, avoid people, stopped working. It's a nightmare and
 sometimes I think to "give up". 16 months before i was a dynamic
 veterinarian and loved my children.  Anybody have a same experience? I
 need to talk .... CARPE DIEM

I have had dizziness almost every day going on 2 years!!!  I also have
 other symptoms at times, malaise, tingling in face and hands, headache
 a bunch of other symptoms to long to list. I been to a few doctors and
 have had a MRI and multiple tests that all are normal. Anyway, I have
 suffered from migraines with aura and a very good web site for
 "Basilar Artery Migraines(BAM)"which can cause dizziness & other
 symtoms-www.s-2000.com/bam/

Does anyone have the following symptoms exactly? Migraines once a week,
 numb toes when exercising and nausea with running. Heart pain when
 running. (I am not overweight) dizziness often. motion sickness only
 when riding in a car?

Had a virulent infection resulting in emergency surgery in January.
 Was treated with gentamiacin for ONE week (intravenously). 3 days after
 coming home from the hospital, I began to feel lightheaded. The next
 day  my equilibrium was GONE! ENG's show no response in either ear
 since  early February. Have gone for vestibular rehab at MUSC and am
 doing  several exercises 2x daily. I'm improving after 3 weeks!! Has
 anyone   gotten ALL BETTER, and how long did it take? I want to ski

I have bileral perilymph and would like contact with someone with the
 same complaint.  Margie from Australia

Margie from Australia here again.  Error in my email.  Make that Bileral
 Perilymph Fistulas  This is holes in the windows between the middle and
 inner ear.  It started after childbirth.  So if you become nauseated
 after having a baby this may be the problem  Hoo Roo Margie

Margie from Australia here again.  Error in my email.  Make that Bileral
 Perilymph Fistulas  This is holes in the windows between the middle and
 inner ear.  It started after childbirth.  So if you become nauseated
 after having a baby this may be the problem  Hoo Roo Margie

Margie from Australia here again.  Error in my email.  Make that Bileral
 Perilymph Fistulas  This is holes in the windows between the middle and
 inner ear.  It started after childbirth.  So if you become nauseated
 after having a baby this may be the problem  Hoo Roo Margie

Margie from Australia here again.goldie  Error in my email.  Make that
 Bileral Perilymph Fistulas  This is holes in the windows between the
 middle and inner ear.  It started after childbirth.  So if you become
 nauseated after having a baby this may be the problem  Hoo Roo Margie

I have had dizziness and vertigo problems for over two months now. I
 have had the tests, hearing, ENG, MRI, bloodwork and all are normal.
 Doctors are talking about Meniere and other possible causes. Doctors
 are confused by the fact that the symptoms occur only during or after
 heavy exercise. Symptoms can last for days. Many things I have read
 sound similiar except many of you suggest exercise helps. Looking for
 anyone with similiar problem or any help in this area. Thanks, Paul.

Have had three bouts of incredible spinning/nausea, vomiting.  Got two
 just after first of year and now am just recovering from one I got over
 the weekend.  Spells typically last two solid days.  Going to see my
 first ear, nose and throat specialist tomorrow.  Thank you all for your
 comments - I am learning from your experiences.

I do not have dizziness as often as some of you, but when I do feel
 dizzy I feel like I am going to pass out.  Like many of you I have had
 all types of tests done and found nothing.  Sometime I feel like it is
 triggered with my eyes.  The longer I stare at something I am reading
 or even typing this message can trigger a dizzy spell.  I appreciate
 reading all of your comments and am amazed at how many people suffer
 from this.

My name is jeanette.  Four years ago I developed sudden dizziness.  I
 never had spinning but I always felt like I was walking on a boat and I
 was lightheaded most of the time.  This lasted for about one year.  It
 got better.  I went to every doctor imaginable.  This last year I was
 diagnosed with a vestibular disorder.  I suggest anyone who has
 dizziness and has been to a doctor and has had no easy answers should
 go to a Center for Dizzy and Balance Disorders.  These people are

My Meniere's was so bad I had to stop working. I have reduced salt
 intake and am undergoing gentamycin injections. Now instead of getting
 the horrible dizzies I just get kinda bouncy vision. I hope and pray it
 gets gets better and my good ear remains OK. If anyone has suggestions
 or just wants to chat E-mail me MTaorm8249@aol.com

It is amazing to find other people who can actually understand what
 constant vertigo is like.I hope to be able to share & learn.
 Please feel free to e-mail me.(KhatJa@aol.com)        THANK YOU

Has anyone else had Vestibular Neurectomy? I've had it, plus a review. I
 have had vertigo 24hrs/7 days since Feb '91.Neurectomy was
 unsuccessful.

Help..I don't know if this is permenant or what, but I can not handle
 this vertigo problem  I have missed several days of work, with a few
 days of relief and then my world is spinning again.   I can not
 concentrate on much and I feel helpless.

Please visit the meniere's web site at www.menieres.org  and click on
 the bulletin board for support and comments from other patients.