1998 Archives of Vestibular Disorders Hotsheet

My coping tips would be first a strong belief in God, that gets me
 through most of it!  Others are getting enough sleep, finding something
 to do that keeps me feeling useful in the world, such as writing
 senators for more vestibular research funding, and having a good cry
 when I feel like it! :)

Meniere's since 2/92.  Symptoms at first were short episodes of
 vertigo/double vision.  I have had over 200 of episodes.  Taken many
 meds.  What seemed to work best until 2/92 was Diamox and Inderal.
 Now, nothing is working and I am having drop attacks and constant
 dizziness.  Sac Decompression surgery recommended by Johns Hopkins.
 Anyone with experience?  Please E-Mail me.  Life is changing more than
 I can handle some days.

I feel it's important to learn as much as possible about  dizziness and
 balance disorders, in order to cope with them  better.  Also, join the
 Vestibular Disorders Association (VEDA),  and get on the "Link List"
 for your state/country.  Get involved  with a local support group - or
 start one yourself, if none  exists.  (The link I've provided here is
 for the group I started  in western New York State.)  Do as much as you
 can, when you can.

please send me any information you may mail out.

Thank God I found you, it gets lonely staggering around in this dizzy
 world. Lois

I am having a lot of problems with getting the feeling of being spaced
 out and continuous dizziness. in the head. First i thought it was
 medication side effects but it is not. I want to know if this is a
 common disorder and what can I do to cure it.

I have bilateral Meniere's and am interested in speaking with others
 with the same.

I have developed vertigo/dizziness as another symptom of CFS/ME.  The
 attacks which occur once or twice weekly are extremely debilitating and
 frightening - especially if they occur in public.  I am now loathe to
 go out on my own.  I am now being investigated by a hospital consultant
 and will have an MRI next week plus various balance tests.   I hope
 that things will work out.  I am taking SERC.

Whenever I mention this to anyone they always make a joke of it. I
 usually joke back a little too but this condition does bother me and I
 want to feel normal and energetic like I'm used to. It comes in spells
 about every other month, more or less, and it lasts for a week or more;
 especially in the morning, in the shower, and any quick sudden
 movements up/down -(getting in/out of bed).I've taken Meclizine but I'm
 already feeling fatigued and this makes it worse.

Light-headed, dizzy and nauseous single working mother age 34 is
 desperately seeking advice and encouragement. Have had blood suger
 tests, MRI, ENG etc. No definite answers. Tried meclazine,
 antihisimines, ativan and currently diuretics with no results. SOOO
 tired all the time. Afraid of loosing job, loved ones and my mind after
 only 3 months of constant lightheadedness and dizziness. Help!!!!

Been suffering from vertigo, imbalance, sea sickness since 10-12-93.
 Went to bed normal on the 11th and woke up with the room spinning on
 the morning of the 12th. Doctor said it was nerve damage to my inner
 ear caused by a virus. Tried physical therapy and many meds. Still have
 it every single day. Life was totally changed overnight. Day to day
 living is difficult when you are constantly seasick. Anyone have a
 miracle cure?

The first instance of dizziness occurred several years ago when I woke
 up in the morning.  I could not move for more than an hour without
 getting dizzy and nauseous.  I also have had a less extreme version of
 this dizziness periodically (about once a year) for the past three
 years.  It just happened again and has been with me for about a couple
 weeks.  I now get dizzy with only certain head movements.  I'm taking
 earwax medicine and occasionally Advil for accompanying headache.

Since Nov. '92, I experience waves of dizziness every time I move my
 eyes/head. I have seen several doctors in Canada and the U.S.  No help.
 No medication helps. Rehab exercises did not help either. It started
 three months after I had a dental bridge put in my mouth.

Severe symptoms of spinning while sleeping occured after running fall
 marathons the first two years.  Saw Physicians and was put on antivert
 that seemed to help for awhile. Now the symptoms reappear occasionally
 but are more severe and the antivert helps the spinning sensations
 somewhat but a light-headedness remains.  Always more severe at night
 with any head movement and also when first getting out of bed. Have to
 grab the walls to maintain balance and nausea acccompanies the

I am starting a dizziness and balance disorders support group in Central
 FLorida.  If you or anyone you know is interested in joining or
 learning more about the group please feel free to e-mail me.

I've had vestibular neuritis, off an on, since '89. I've tried just
 about  everything, some things worked for me, and some didn't.  Noone
 seems to mention using ginger root, which has helped me many times.
 Doctors seem hesitant to believe in it, but I know many who've been
 helped. Just ordinary ginger root. Make a tea out of it, or do like I
 do  and just put a good size pinch under the tongue and then after a
 few minutes wash it down with some water. Ginko extract seems to help

I live in France and have an excellent doctor who performs the Canalith
 Repositioning Maneuver: he" whacks"  me onto a stretcher until my head
 stops spinning, in short makes me terribly car sick. Then I am down for
 24 hours... I have had this treatment three times in two years,
 tomorrow I'm in for another one. They do help, but not for ever!Has
 anybody else had this treatment

After 10 years of symptoms, I have a little relief from Dothiepin (anti-
 depressant) which the neurologist prescribed.  It seems to have
 dampened down the symptoms of spinning vertigo although residual
 unsteadiness remains.  Could help those of you for whom vestibular
 drugs have proved useless.

Anyone hear of an amino acid called L-Lysine that helped with dizziness?
 Someone told me it can help???

I have suffered from vertigo since a plane trip last March. I am still
 undergoing tests for diagnosis and am desperate to find out the causes.
 I'm still new to all of this but your site is a big help. It helps to
 know there are people out there with the same problems.

I have been dizzy with vertigo most of my life, on and off. My symptoms
 relate to Vestibular disease (I will be tested late Feb.). This last
 year the symptoms never went away. I always thought it was depression
 and anxiety that made me dizzy. Now I know the disease could be the
 cause. I am glad to know it is a physical problem and not emotional. I
 always thought it was physical, but out of all the doctors I have had
 for the past 30 years, not one thought so until my present ear, nose

I was told I had Meniere's a little over two years ago after 2severe
 attacks in 2 months.  Went throught the MRI and  other tests. Very
 scary time for me and my family.  I have only had minor attacks since
 then.  I have stopped taking caffine, salt and on low fat diet. Still
 carry antivert and promethazine everywhere I go. Even though I have
 been blessed with minimal attacks since then, the fear of another is
 very strong.  My prayers are with those who have it worse than I.

I have suffered with bouts of "dizzy, swimming feeling" for 6 years.
 Constant for 10 days to 3 months. Since it is not true "vertigo" no one
 with Humana HMO wants to take me seriously. I'm a teacher ready to go
 on disability if I can't find relief. Speicalist recommedations???
 Cost???

I am visiting this site because I have been dizzy ever since I  got off
 a cruise ship 6 weeks ago.It comes and goes very unpredictably. It   It
 makes me so tired that I have to keep taking naps. I wonder if that  is
 a side effect of being dizzy or if I'm just getting lazier.  My doctor
 said prolonged dizziness after debarkation is not  unusual, but 6
 weeks? This is ridiculous.

I recently was told that I had Vestibular Disorder.  I am currently
 taking clorazepate 3.75 mg x 3 daily.  Yet, I am still suffering the
 spinning feeling.  So much spinning, that I have to lay down and rest.
 Usually when I lay on my right side, the feeling begins.  I am 21 and
 hearing impaired to begin with and on top of this, this problem.  I
 have not seen a Vestibular specialist yet.  Does anyone have any
 suggestions.  Please help....I need help can't stand it.

I've had benign positional vertigo for 4 years (although just diagnosed
 a few months ago-after being told I was crazy many times).  It comes
 and goes in intensity but never leaves.  Anyone with this also have a
 problem just trying to read an such?  any suggestions for any releif
 appreciated immensely. You are all in my prayers.

I've had benign positional vertigo for 4 years (although just diagnosed
 a few months ago-after being told I was crazy many times).  It comes
 and goes in intensity but never leaves.  Anyone with this also have a
 problem just trying to read an such?  any suggestions for any releif
 appreciated immensely. You are all in my prayers.

Can't believe how many suffer like I do! Was diagnosed with cervical
 vertigo and post traumatic migraine, following an auto accident Feb/95.
 Life has not been easy.  Need help.  Have tried physical therapy,
 meclizine, antivert, amitriptiline, zoloft, compazine and then some.
 Anyone out there with similar problem with any advice, please look me
 up.  Thx Heather and desperate!

I'm having dizziness often.  Have TMJ and also a disc in my neck that is
 giving me some trouble.  Any advice?

My cure for the dizzy spells is a homeopathic medicine called Echinacea.
 Take 30 drops 3 times a day for 5 days, go to bed before  11.00 pm  and
 don't drink alcohol. After the first day you already feel the
 difference. I have had 4 spells of dizziness over the last 3 years and
 every time it works and the spells stay away longer.  The spells hit
 you when resistence is low and Echinacea builds up your resistence. It
 is made by Dr. Vogels (Dutch) and Bioforce (Swiss) and many others and

My 6 year old son has had vertigo for the last four years.  He is
 violently sick and absolutely terrified when the bad attacks come -
 every 4 to 6 months. He also feels slightly wobbly almost every other
 day. He is partly deaf, but this is stable, and therefore unrelated or
 so the doctors say.  Are there any other child sufferers out there?
 His Christmas wish this year was for the wobbliness to go away forever.
 If only I had a magic wand.

Went on a cruise 12/6/97 and have been "cruising" ever since without
 the benefit of the Caribbean breeze. Coping by remembering God blesses
 us in our trails if we are faithful. It's good to hear other comments
 to know we are not alone.We may rock/roll & stumble around differently
 but we have kindred spirits. Wish more research were being done. Also
 educating doctors so they can understand & acknowledge difficulties we
 are having.  Wish everyone smooth seas and level land and relief.

I have been having "dizzy" spells for the past few months.  At first I
 thought I was just over tired or stressed out, but the dizziness is
 just getting worse.  I went to a doctor and he prescribed Meclizine and
 told me I would just have to learn to live with my problem.  The
 Meclizine only makes me feel worse.  Any suggestions or advice.  I am
 desperate.

It is such a reilif to know there are others out there and I'm NOT crazy
 !!! I have suffered from the feeling drunk imbalance to spinning
 dizziness which is less often. But some form of it every day for 3
 years. Diagnosed with a right vestibular choloric lesion that doesn't
 show up on MRI. Please anyone with same problem, E-mail me and share
 help. I've lost good jobs because of this. I'm a practical nurse which
 requires ALOT of energy. Maybe we could help each other.

I suffered for several years, both extreme vertigo and frequent lighter
 dizzy spells.  I have access to the finest MD's, but it was of little
 advantage.  I went through all the usual things till I foundnd a great
 neurologist.  He found extreme tension in my head and neck and
 prescribed Prozac.  I don't suffer from any depression or behavioral
 problems, so I was concerned about taking that drug.  But it had
 tremendous effect on my vertigo and no other effects!  We gradually

I didn't realize so many people had the same problem.  So maybe I should
 save my time & money & not try any  more doctors?I am open for any
 advice.I have had the  really bad vertigo for 3 years.Have had some
 dizziness   for a very long time & a small amount is almost always.  I
 have migranes tmj neck pain & ect.I have tried lots  of things so
 nothing has worked still hoping & praying.

Woke up with severe dizz. 1 yr. ago, been to all types of Dr's, then
 Mayo," Officially" BPPV but each Dr said I was in good health - "need
 to see shrink" - tried that & Prozac - no meds have worked!  Symptoms
 have expanded to unilateral tinnitus & constant nausea for the last 3
 weeks.  Lost my job! for being honest about condition.Will get tested
 again for hearing ( 1st test showed loss in 1 ear) just in case it's a
 tumor! Looks like I'm in same boat as most everyone else- no answers!

Would like all information on food allergys with Menieres Disease and
 any info on Menieres and SSI just any think on Menieres.

I have been diagnosed with an inner ear viral infection.  I feel
 constantly dizzy, with some extremely bad days where I can hardly
 walk straight. I get extremely depressed and do not enjoy doing
 anything anymore - I cannot even take a walk in the park without
 feeling like the world is a waterbed. Would appreciate any people to
 share this frustration with, as I can only burden my family with so
 much.   Thanks.

  2 years ago went to bed feeling fine, woke to find room spinning.
 Been dizzy ever since (varying degrees), ear fullness mainly on  left.
 Feeling depressed, exhausted, affecting job, family life.  Had MRI,
 soon to have ENG. Have felt very alone at times - glad  to know I'm not

Was advised by another sufferer to try Echinacea drops - 15 drops, 3
 times a day (put in a little water and have before meals).  Do this for
 5 days and you may start to see improvements.     It has just worked
 for me and I have been trying things for 5 years now.  Stay away from
 alcohol as well as this may bring on dizziness problem.

Diagnosed as having a virus-caused vestibular nueronitis following
 second attack of vertigo in two months.  Dizzy daily with some nausea -
 can't read or play music which is my soon-to-be-lost job.  Anitvert
 helped at first; now trying cortizonesteroids and valium (no help so
 far).  Only relief is found in watching TV(boring) and riding in a car.
 (These things are supposed to move.)  HOW LONG WILL THIS LAST?

I have been having episodes of vertigo for about a year and a half.  I
 was told by my doctor that I have otosclerosis.  I was put on  a drug
 called Periactin, Calcium, and Didronel.  Now I would like to get
 pregnant, and I would like to see if there is any way to get off the
 medications.  Does anyone know of any other alternative treatment?

I was diagnosed with benign postional vertigo three months ago and have
 discovered that 11 of 200 people at my work place have been diagnosed
 as well.  Does anyone have information regarding possible environmental
 factors in relation to symptoms of vertigo?

I have been dizzy since I received massive dosses of gentamicin. One
 dr.diagnosis was ototoxicity  and one dr. diagnosis was menieres
 disease.   Has anyone else had this similar situation?
 i

I have been diagnosed with Morbus Meniere in 1995.  Has anybody
 experiences with trad. chin. medicine,   acupuncture or ...?  Thanks
 for an answer!  Beate

Hi- it's me again (about four letters back) with vestibular neuronitis.
 Today my daughter spent the day flat on her back, vomiting and so dizzy
 she can't turn head, etc. etc.  IS THIS STUFF CONTAGIOUS????  Please E-
 mail or leave message here if your vestibular problems are now showing
 up in your famly members.  Thanks!!!!

There is nothing like having People surging thier shoulder when you tell
 them your dizzy problems. Hope soon to have mine solved or at lest have
 them diognosed. I have a lot of problem  being able to spell things
 just can't think how things go sometimes. Does anyone else have this
 along with others? e-mail me bettyh@hcis.net

I was diagnosed with vertigo approx. 7 months ago.. my question is as a
 rule how often do you get the attacks of dizzinss and other symptoms??
 my first one was in july 97 2nd one october97 and last one march 14th
 1998.  I am 64 yrs of age and in good health except overweight. can
 anyone tell  me if there is warning signs of an attack coming on?? I
 would appreciate  any and all comments or help.  Jim Schultz
 bovi@naples.infi.net

I also have BPPV. Had the Eply manuver, and spinning stopped!  I also
 have bouncing vision (oscillopsia).  Vestibular disorders are not a fun
 thing to live with.  If you want to correspond and compare notes, email
 me at Snicker112@aol.com.  I pray for us all.  You are not alone!

I have been coping  with vertigo for about 14 years and have a family
 history of Meniere's.  I experience dizziness, to a greater or lesser
 degree, on a daily basis and have episodes that  knock me down for 3-5
 days.  The standard meds (Antivert - over-the-counter as Bonine) and
 Inderal.  I'm as frustrated as everyone with this condition because
 there is no escape or real relief.  It's a never-ending roller coaster
 ride!

I would like to correspond with those who suffer from dizziness and
 balance disorders.  I have had my symptoms since 1992.  I am learning
 to live with this, even though some days are so difficult.  God bless
 all of you out there, but talking helps, so let's talk!

Is the duration of the dizzy spells and fullness in the head different
 in each  person??I am going on day 7 with very little relief, cut out
 salt, taking anti  vert 4 times a day but not much help from the
 medication. mri neg as well as other tests  I have had 3 attacks first
 one in July 97 last one march 13 this one is a doozey.  any thoughts or
 comments appreciated.  Jim Schultz

About 5 days ago I started getting abnormal dizzy feelings and thought
 it was because I stopped taking my blood pressure medicine.  When I
 resume the b/p med, it's had no effect and I'm feeling worse.  I've
 been to the doctor twice and he says it "could be anything".  I have
 chest pains and shortness of breath.  Should I have a Catscan or MRI
 done?  I don't feel like vomiting but walking makes it worse.  If I
 lay flat for a time, it goes away.  Advice?  I'm concerned....

I'm 48, married I have bilateral vestibular loss do to gent.since1996I'm
 still learning to live with this lossin a possitive way.

I suffered from vestibular neuronitis for 18 months and had two surgical
 interventions.  I had experience prior to surgery with very
 unsuccessful physical therapy and occupational therapy post surgery for
 neuro sensory integration.  The latter of the two was very successful.

I was just wonderin' if anyone out there had anything like what happened
 to me, happen to them. I was just sitting in my computer chair at home
 and all the sudden my heart staerted doing a skipping thing, then of
 course I though I was having an attack or something, so had gotten all
 worked up and well felt weird and dizzy. Well anyway after having every
 test in the world they found a distubance in inner ear but they don't
 know what it could be. No tumors or anything just saying that it could

Had two falling episodes; diagnosed with peripheral vestibulapathy or
 labyrinothopy of unknown origin - damage to right inner ear. dizziness
 every day - on Valium and Antivert. Sometimes helps, sometimes doesn't.
 Filed for SS disability and was turned down because I can "think for
 myself." Anyone out there had problems filing for SS disability with
 this condition? Any suggestions? I feel sorry for everyone who has this
 condition - it isn't funny and most of all is scary.

I have had  every vestibular symptom listed on VEDA's list of   symptoms
 for 3 years now.  I have mostly a feeling of chronic disequilibrium
 every since I got viral labrynthitis in nov of 1995  I believe that
 it's a leftover chronic condition from that. don't have a definite
 diagnosis.  I guess you could say I have (God only really knows)!  I
 would like to hear from others to give and receive support and mostly
 interested in information on new research and who's doing it?  don't

Scrolling through the posts I see a definate pattern: there are ALOT of
 people just like me and we are all searching desperately for a cure. If
 one is to be had this is the place it will turn up first! Until then
 I'll keep checking the web site of the Vestibular Disorders Assoc
 (VEDA).

Menieres since 1981, remisson for a while.Back again strong last 2
 yrs.Have had 2 surgerys.I'm still not feeling well. Every day is a
 struggle. My head feels foggy and my balance is off every day.If anyone
 else has the same, would like to chat.Talking to others who have these
 problems seems to help.

been diagnoised vestibular disorder but the doctors don't know why.
 almost a year now. always feel slightly drunk and have a bit of a
 staggering walk. have spells of offbalance light to very bad. feel like
 gravity is pulling me down to the right. often feel like a finger is
 pressing above my right ear canal. worse at night when it feels hot.
 legs feel weak. panic attacks.thinking off. yawning spells. 44ys

been diagnoised vestibular disorder but the doctors don't know why.
 almost a year now. always feel slightly drunk and have a bit of a
 staggering walk. have spells of offbalance light to very bad. feel like
 gravity is pulling me down to the right. often feel like a finger is
 pressing above my right ear canal. worse at night when it feels hot.
 legs feel weak. panic attacks.thinking off. yawning spells. 44ys

I have tried the echinacea and it worked once but not so well the second
 time.  I read about Claritin D. It is not available in Canada but I
 just tried Claritin's 24 hour non drowsy formula for the attack I had
 this week and it seems to be working well.  Pharmacist says it is
 alright to use on an ongoing basis.

Hi.  Have to make this short.  In Dec. I was fine one day until after I
 blow dried my hair.  I then got extremely dizzy and started vomiting
 twenty minutes later.  It laste a little more than a day.  A week
 later, same thing.  Went to ER told me it was an inner ear virus (what
 is that anyhow?)  Went away, been gone for months, now, in April, I'm
 starting to get these headaches with constant ear pressure and
 dizziness?  Any of this sound familiar?  Please Help.

Veteran of Meniere's 13 years, hearing loss, tinitis, dizzyness,&   loss
 of equilibrium. Experienced nearly all of drugs and diet   supplements
 seen here, physical therapy, vestibular therapy and pain  management (4
 week, in patient, RIC) plus sinus and ear surgery.   Add chronic
 migraine and three back surgeries; I learn to  cope, daily.
 Discouraged? At times. Depressed?  No Way!   Will share experience if
 it will help, one to one.

need to learn more

Found on Medcsape.com re: BPPV. Hope it helps!  look into The Hallpike-
 Dix maneuver for diagnosis and  The Epley Maneuvers  for some releif
 .After the maneuvers, advise the patient to keep the head above 45° for
 2 days so the crystals will not migrate back into the posterior
 semicircular canal, causing a recurrence of symptoms.  Based on Epley
 JM.[5]

I have had problems with vertigo most of my life.  Very severe 3 years
 ago.  After eng, mri, etc. was told it would just have to run its
 course.  Been on antivert since.  Have daily feeling of off balance
 when I get fatigued.  Just began exercises to try to eliminate BPPV.
 Now I feel worse than before.  Hard to stay upbeat.  Any encouragement?

I have had vestibular neuronitis since February 1993.  My  episodes were
 infrequent (every 6 months) and only lasted about  7 days.  However, I
 am now experiencing my second episode this  month and I am in my 9th
 day of feeling dizzy.  I have been taking  echinacea tablets (350 mg)
 hoping that it will help.  Does anyone  have any advice about how many
 mg I should be taking a day?    I'd love to correspond with someone
 about all this.  I'm 26.

My dad has been suffering from vertigo for years.  He is finally
 happily retired for the past six years but it still flares up on him
 and he is stubborn and will not see a doctor.  I, too, like the rest
 of you, am looking for the miracle cure?  Can anyone help me help him?
 My dad is 69 years old, lives in Florida and golfs five days a week and
 this vertigo does not allow him to enjoy his retirement.

I am a long-time sufferor of meniere's.  Yesterday, I went to see a
 relatively new ENT for what feels like a sinus infection.  I only saw
 him once previously.  I waited one hour to see him.  He finally saw me,
 gave me 5 minutes of his precious time, long enough for a quicky exam,
 told me he didn't see anything wrong and sent me for a CAT SCAN of my
 sinuses.  I had a few questions I wanted to ask concerning my symptoms,
 hearing loss, tinnitus, severe headaches, but I got such a rush act, I

i HAVE BEEN SUFFERING FROM DIZZINESS FOR A LONG TIME BUT MOST RECENTLY
 IT HAS GOTTEN REALLY BAD. I have been to ENT, Neurologist had MRI, ENG
 blood work nothing comes up must have inner ear damage due to virus.
 Well strange thing I came across an article about dizziness and vertigo
 and couldn't belive this Doctor who is a "Specific Chiropractor" he
 took X-rays of my neck and head and low and behold one of my vertibra
 was twisted and causing the problem it was unbelievable.  I have seen

Hoping these suggestions will help!  No one out there has suggested
 accupuncture, or shiatsu therapy.  Accupuncture and shiatsu could be
 very helpful for your presenting symptoms. I have learned when
 conventional medicine is offering you no solutions you have to find
 your own.  Raspberry tea is very helpful with nausea.  Wishing you all
 some success.  Korey

I's not a miracle cure...BUT IT WORKS!!! For all the people suffering
 from vertigo like symptoms. There is an inexpensive drug called
 STUGERON FORTE trade mark, produced by Janssen Pharmaceutica (Belgium),
 active ingredient is CINNARIZINE. This medicine is NOT available yet in
 the United States, but can easily be found most anywhere else in the
 world, sometimes without a presciption. Do you live in Europe or the
 Middle East or have friends or relatives there? This medicine is

Help, for the last 3 months, I find that while I turn on my right side
 in bed, I suddenly get dizzy. This only happens on my right and if I
 bend over to far on my right. Any suggestions or medical views on this
 would surly be appriciated. I am 47 yrs old and worried. Thanks to all
 Jenan

Does anyone have any idea on what might be the problem for chronic
 dizziness?  I take Synthroid (0.l5) - would it have anything to do with
 this.  How about inner ear - where do you go with this problem.  I can
 be just standing around - and all at once it comes on me.  Makes me
 nervous, scared & my BP rises & pulse beats fast.  This doesn't happen
 every day - just occasionally.  Thanks.

Does anyone have any idea on what might be the problem for chronic
 dizziness?  I take Synthroid (0.l5) - would it have anything to do with
 this.  How about inner ear - where do you go with this problem.  I can
 be just standing around - and all at once it comes on me.  Makes me
 nervous, scared & my BP rises & pulse beats fast.  This doesn't happen
 every day - just occasionally.  Thanks.

Been diagnosed vestibular disorder but docs dont know why.Fuzzy
 headed,slightly staggered walk. Spells of unbalance where I feel
 gravity is pulling me to the right. very weak and loss of normal
 function in my legs after sitting for a while. Consintration hard and
 short term memory proplems. Yawning spells make me feel weak. panic
 attacks. 44 years old

HELP PLEASE!  I have a daughter Danielle, who is 11 years young.
 Danielle has had dizzy spells all her life & had all the tests to go
 with it. Doctors report, unknown? Danielles spells can be marked on the
 calander every 70 to 80 days vomits for at least 24 hours and recovers
 in 2 days as if nothing has happened.Help Danielle please.

Found: The Institute for Neurophysiologial Psychology on internet.
 From UK. "...malfunctioning balance mechanism...suffer from gravita-
 tional insecurity. Neurological deficiency in the functioning of the
 central nervous system. NND can be diagnosed and treated." There is a
 phone and fax that I have not been able to use for a contact. Peter
 Blythe is person who has been in research with this.  Maybe others can
 search for their site.

Been suffering with positional vertigo attacks for the past 21 years.
 Take antivert, and within a week or 2 its gone. Have found taking a
 stong daily multi-vitamin,(OneSource brand at Walmart - has many
 minerals not found in most), along with Super Lysine Plus (Quantum- at
 health food stores) prevents them. Last attack was 10 months ago.   5
 people close to me suffer the attacks; we have the following  in
 common: female, A-type personalities, and overweight.

I am a long-time sufferor of meniere's disease, over 35 years.
 Initially the symptoms weren't too bad.  Over the years, they have
 intensified.  Truthfully, I've seen many doctors and specialists who
 have come up with absolutely nothing.  Just "it's something you'll live
 with".  I am never without meclizine which I take as needed.  Many
 years ago, my doctor in NY suggested I stay on a daily 5 mg dose of
 valium to help lessen the spinning.  I must admit it works (for me).

Bottom line...vestibular illnesses are not cureable, most anyway. You
 are resigned to  a life of suffering.Ultimately if you cannot take it
 consider taking your life. Because life  with vertigo is hell.

Pesimistic me again,    It is a shame to see how many of us are
 suffering. This vestibular stuff  should be treated as a medical crisis
 yet we are put off. There is not jack anything  new on this
 illness/condition. Now my doc wants me to take Verapamil,  a damn heart
 drug, calcium channel blocker. Anybody else getting this adv.

Have been having spells since march 28.started on a car trip home from
 Louisiana.  Mine are mini spells (lasting a few seconds) every 3 to 5
 minutes morning, noon, and night and are unaffected by movement.
 Awaiting results of MRI and Meclizine is helping!  My scientist friend
 who works at NIH says it depletes B6 so you must suppliment but do not
 mega dose.  This will help with the fatige.

Have been having spells since march 28.started on a car trip home from
 Louisiana.  Mine are mini spells (lasting a few seconds) every 3 to 5
 minutes morning, noon, and night and are unaffected by movement.
 Awaiting results of MRI and Meclizine is helping!  My scientist friend
 who works at NIH says it depletes B6 so you must suppliment but do not
 mega dose.  This will help with the fatige.

    Mine are mini spells (lasting a few seconds)  every 3 to 5 minutes
 morning, noon, and night   and are unaffected by movement.  Awaiting
 results of MRI and Meclizine is helping!   My scientist friend who
 works at NIH says   it depletes B6 so you must suppliment but do  not
 mega dose.  This will help with the fatige.

  Mine are mini spells (lasting a few seconds)  every 3 to 5 minutes
 morning, noon, and night   and are unaffected by movement.  Awaiting
 results of MRI and Meclizine is helping!   My scientist friend who
 works at NIH says   it depletes B6 so you must suppliment but do  not
 mega dose.  This will help with the fatige.

BEEN SUFFERING INBALANCE SINCE 1992 . SYMPTOMS  CAME AFTER TWO
 SURGERIES.  SEEN EVERY SPECIALIST  AND DIAGNOSIS IS CLASSIC VESTIBULAR
 DISORDER SYMPTOMS BUT TESTS ARE NEGATIVE. TAKE XANAX EVERY  DAY.HELPS
 BUT NOT ENOUGH. JUST GOT DISABILITY AFTER  FIGHTING GOVT. 3 YEARSS.
 SEEMS THE LAW JUDGE IN MY CASE NEVER HEARD OF A VESTIBULAR DISORDER!
 LUCKY HIM. WHY IS THE GOVT NOT DOING MORE TO FIND A CURE  FOR THIS?

INBALANCE BEGAN IN1992 AFTER A SURGERY. HAVE ALL  SYMPTOMS OF A BALANCE
 DISORDER TESTS THOUGH ARE  NEGATIVE. TAKE XANAX EVERYDAY HELPS BUT NOT
 ENOUNGH. JUST GOT DISABILITY AFTER A 3YR BATTLE WITH  GOVT.LAW JUDGE
 NEVER HEARD OF A VESTIBULAR DISORDER! LUCKY HIM. DRS. THINK I'M STUCK
 WITH THIS AND I SHOULD LEARN TO LIVE WITH IT   PATRICE.

My dad was diagnosed with vertigo about three years ago. He had an
 extremely bad case of it. He has never fully recovered. He gets these
 major pressure headaches and is constantly biting off everyones head.
 He eats Tylenol like there is no tomorrow. My dad is 47 and it breaks
 my heart to think this is how the rest of his life is going to be.
 Does anyone have any suggestions about this? Any information at all
 would be greatly appreciated.

my diagnosis is neuronitis. I have a lot of treatment and nothing work.I
 leave with a permanent dizziness brain fog and difficulty of
 concentration. Anxiety and depression. Have anybody experiences about
 medicines against depression and neuronitis.

Hi! Its Sue again from above.  I finally got my own computer, so I don't
 have to use anyone else.  As I was saying I am going to a Specific
 Chiropracter and I think he is helping slowly.  He claims he can help
 with all inner ear disorders.  If you want more infor E-Mail me

My E-Mail address did not show up first time sorry!

DEVELOPED A DISEQUILIBRIUM WHEN I WAS 22 AND LASTED FOR 3 YEARS -
 DISAPPEARED FOR 13 YEARS AND RETURNED ABOUT 2 YEARS AGO.  I AM
 CURRENTLY TAKING VALIUM 5 MG AND IT WORKS HOWEVER IT DOES MAKE ME
 TIRED.  MY DIZZINESS HAS ITS PEAKS AND VALLEY'S.  MY ONLY HOPE IS THAT
 IT WILL GO INTO REMISSION FOR ANOTHER 13 YEARS.  EXERCISE SURE DOES
 HELP.  I FEEL FOR ALL OF YOU WHO HAVE THIS PROBLEM.

DEVELOPED A DISEQUILIBRIUM WHEN I WAS 22 AND LASTED FOR 3 YEARS -
 DISAPPEARED FOR 13 YEARS AND RETURNED ABOUT 2 YEARS AGO.  I AM
 CURRENTLY TAKING VALIUM 5 MG AND IT WORKS HOWEVER IT DOES MAKE ME
 TIRED.  MY DIZZINESS HAS ITS PEAKS AND VALLEY'S.  MY ONLY HOPE IS THAT
 IT WILL GO INTO REMISSION FOR ANOTHER 13 YEARS.  EXERCISE SURE DOES
 HELP.  I FEEL FOR ALL OF YOU WHO HAVE THIS PROBLEM.

Long-time sufferor of meniere's with all the symptoms one can think of.
 Have it for over 30 years.  Anyone in similar circumstances welcome to
 respond and to exchange thoughts.

I have had BPV for 14 years.The Doctors told me I had to learn to live
 with it. It is the most annoying thing to have wrong with you as it
 effects every aspect of your life.The problem is my left ear.
 Sometimes when I am reading a book,I feel as if it is moving to the
 left or when I am walking the street is moving or if my head is down
 and I am looking to my left + my eye catches movement I feel like I am
 coming down a roller coaster.Has gotten better.Still have spells.

Hi everyone. I'm not sure if anyone has what I have, but I would like to
 find out since my doctors can't. My problem started 13 months ago. All
 of the sudden I had head rushes and thought I would pass out. Ever
 since, I have had an MRi, cat scan, vestibular test, hearing and eye
 tests, and still no answers. Noone knows what it is. My problem isn't
 dizziness, it's more lightheadedness. I always feel, off. I don't sleep
 very well, and am tired all day. E-mail with any info. Thanks

sorry everyone. I forgot my E-mail address. Mpov86@aol.com

Have been evaluated and assigned an in home treatment program for
 vestibular problems related to childhood head injury today. Program
 uses neurodevolpmental movement therapy and is successful for many
 vestibular and neuro problems with populations across the lifespan.
 Also recommend books by Dr.Harold Levinson M. D. or his Dyslexia Online
 website that describe ramifications.

I get dizzy,break out in a cold sweat,thow up,and bowel movement. This
 has been going on for several years and I have seen many a doctor and
 still no help.LOOKING FOR HELP.

Very happy to see I am not alone!  I have been suffering from
 unsteadiness, off and on, for the past two years.  I remember having
 the same type of problem when I was 16 (now I am 26).  The episodes
 come and go and make me feel as if I am going to pass out.  Here for  a
 few weeks then gone the next.  I am at my wits end.  Have taken many
 tests including MRI, Evoke Potentials, Balance Tests, etc...still
 nothing.  Desperately seeking advice and help.  Respond soon.

i have BBV and i just wanted to share with all you other dizzy folks
 that the number one thing that makes me feel better is avoiding
 fluorescent lights.  stay away.  enjoy natural sunlight.  i feel tons
 better.

I'm so excited that my daughter found this site.  I've been ill with
 'vertigo' for almost 5 years now.  I do not know anyone else with this
 problem and it's great that I have found a way to further educate
 myself on this problem and talk with other who suffer also.  One
 medication was not mentioned in all the info offered and it's the only
 one that worked for me and that is Cayanne capsules.  No one mentioned
 a low sodium diet, and that is one I think will work for me. Thanks!

Just happened.  Woke up April 16 with spinning (some describe as a post
 drunkeness or hangover feeling), vomitted once, then progressively
 better over next three days. Stopped Melatonin.  Car accident 4 mos
 ago, still feel tightness in upper spine area & neck. Currently feel
 dizzy as I lay down, bend over, get up from bed etc.  56 yrs old, never
 any health problems.  Once at about 12 got very dizzy from a child's
 spinning ride at fairground. Please contact.

After reading all your letters I to, feel we are all without hope!
 unless we all fight together for better health care,our rights to
 disibility, or at the least a productive life dizzy free. This is
 important to everyone who comes in contact with us. I've been sick
 since 3-94 seen several doctors,had all the test's seen 3 PT's tried
 the med's mentioned and alternative methods including a chiroprator.
 Diagnosis:Bppv,Vestibular disorder,paranasal sinus disease(next line)

Cont:Vestibulovisul dysfunction,Vertigo of questionable etiology,
 Migrain headaches.At present time I'm sick it seems worse during the
 allergy season.I have lost two jobs do to this illness one of wich I
 was fired when I told them. I was turned down by disibility last year
 and continue to fight I am not going to give up and you shouldn't
 either. It is time people see how this illness affects everyone!!!
 once this happens "maybe" we will have a cure.

I'm a 19 yr. old female who started having dizzy spells after an ear
 infection three weeks ago.  Spell lasted two days, went away, then came
 back next week.  Doctor said I had a virus, put me on Meclizine, was
 fine for a day, then it came back.  Hurts to read, watch t.v. or drive.
 Will be seeing an ear,nose, throat doctor this week. I'm scared, I
 don't want to live the rest of my life like this.

I hit my head and twisted my neck in 12/94.  I fought back with all I
 had but am now at a certain point.  I am very unsteady on my feet,
 blurry vision, hard to concentrate.  I am so sick of it!  Does this
 ever go away?  Does this disorder show up organically in testing?

Treatment in Houston, TX.  Is there anything "natural", like herbs or
 vitamins that help? Thanks.

I want to urge everyone to find a "Specific Chiroprator" look up on the
 internet Kale University and find one that is in your area they are not
 regular chiropractors.  They can help honestly, I went to one and I am
 feeling 100% better.Please look it up it is worth it!  I will answer
 anything if I can.

I want to urge everyone to find a "Specific Chiroprator" look up on the
 internet Kale University and find one that is in your area they are not
 regular chiropractors.  They can help honestly, I went to one and I am
 feeling 100% better.Please look it up it is worth it!  I will answer
 anything if I can.

I've been dizzy for 2 years.  After seeing a host of drs who did nothing
 for me, I finally found a dr who is helping.  People familiar with his
 work say he is the only dr they know of who can help people w/
 vestibular disorders.  If you're still suffering and are able to get
 here, I would definitely go see him.  His name is Kenneth Brookler,
 Neurotologic Assoc., 111 East 77th Street, New York, NY 10021,
 (212)861-6900.  Good luck!

Me again...what is a "Specific Chiropractor"?  I am currently on my
 "good week", of which are few.  I strongly encourage people to do
 research on their own if you have not done so already, and let others
 i.e. family and friends know about how you feel...they can be very
 supportive and perhaps can offer suggestions.  I am currently reading
 and doing research on hormone imbalances, especially for women.  The
 material I have read focuses on an increase in estrogen levels.CONT'D

I am also looking into allergies, the birth control pill, and stress.  I
 find that I feel much better when I do some exercise.  Going for brisk
 walks or doing aerobic activity. It is hard to get   motivated, but it
 helps. The doctor currently has me on thyroid   medication (for
 hypothyroidism - just a possiblity?) and I am going to   see an
 Endocrinologist (studies hormones) next week.  I will keep you   all
 updated.  Hang in there...I am not ready to give up on us!!!

Hi Courtney (and others), I am so happy to have found this site.  It is
 so good for us to know that we are not alone.  The best thing that we
 can do is support each other and talk about how we are feeling.  I have
 BPPV and it sucks.  But I have also learned to laugh at myself and I
 have learned to let family and friends help.  Courtney, I hope that you
 won't have to deal with this for the rest of your life.  I hope that I
 won't either.  I think that are biggest hopes come through networking

To all who read this, a vestibular disorder is not a death sentence. My
 wife became inflicted without any warning. She has been in rehab for
 some time now and she is improving. My best advise to all who suffer
 from this malady is to take things in stride and try to expose
 yourselves to as much good humor as possible. It really works well with
 your therapy. THere is always a ray of light at the end of the
 tunnel.....look for it!

To all who read this, a vestibular disorder is not a death sentence. My
 wife became inflicted without any warning. She has been in rehab for
 some time now and she is improving. My best advise to all who suffer
 from this malady is to take things in stride and try to expose
 yourselves to as much good humor as possible. It really works well with
 your therapy. THere is always a ray of light at the end of the
 tunnel.....look for it!

I'm interested in hearing from anyone having had the surgery called ear
 canal plugging.  What was it like, how long was the recovery period,
 and did it work.

It all began 9 yrs ago after an ENG.(caloric test). Doctor says it was
 just coincidence.HA. Feel like I am always moving, like living on a
 boat. Have had good days & bad. Take valium, after numerous other meds.
 Slows down my CNS so it takes edge off the constant motion feeling.
 Recently developed extreme headaches and the dizziness NEVER gives me a
 break. My neck, head, ears, all ache.  Doc's just give me antibiodics
 for sinuses. Couldn't possible have that many infections! Am female,

Note: If any of you want replies please leave a valid email. I am a
 health professional who has a dizzy disorder to. I will be glad to give
 free advice. One key to any helpfull treatment is to get the right
 doctor  early. Go to a neurotologist before your family doctor or a
 shrink.    Vince

Dizzyness started june 95 with viral type infection.Ears feel full at
 times,dizzy every day to varying degrees.Diagnosed with peripheral
 vestibular lesion and a type of vertigo called mal de debarquement.No
 better despite vest.rehab.exercises.I am not happy with continuing
 symptoms and also very tired all the time.Does anyone know why,or what
 other exercises apart from cooksey type can help. Thanks Paul.

Hello! my name is Leah.I am 20 years old. I had a Laparoscopy in October
 for bladder pain. Am fine but ever since, I have this brain fog feeling
 all the time. I feel as if I am dreaming my surroundings and can't
 quite   seemto focus at all. Almost as if I am drunk and in this
 dream.Its so   hard. I am like this ALL the time! I can see fine, but
 can't grasp   my surroundings! I am going to see a balance specialist
 next week. Does  anyone have any advice! Thank You!- samimi@pacbell.net

Hello! my name is Leah.I am 20 years old. I had a Laparoscopy in October
 for bladder pain. Am fine but ever since, I have this brain fog feeling
 all the time. I feel as if I am dreaming my surroundings and can't
 quite   seemto focus at all. Almost as if I am drunk and in this
 dream.Its so   hard. I am like this ALL the time! I can see fine, but
 can't grasp   my surroundings! I am going to see a balance specialist
 next week. Does  anyone have any advice! Thank You!- samimi@pacbell.net

Hello! my name is Leah.I am 20 years old. I had a Laparoscopy in October
 for bladder pain. Am fine but ever since, I have this brain fog feeling
 all the time. I feel as if I am dreaming my surroundings and can't
 quite   seemto focus at all. Almost as if I am drunk and in this
 dream.Its so   hard. I am like this ALL the time! I can see fine, but
 can't grasp   my surroundings! I am going to see a balance specialist
 next week. Does  anyone have any advice! Thank You!- samimi@pacbell.net

Hi.  I'm 26 and I have BPPV.  It sucks, but I've also learned to laugh
 at myself.  I'm seeing an occupational therapist for vestibular
 rehabilitation and I am getting better.  If there is anyone out there
 who wants to e-mail about how they are feeling, treatment options, etc.
 please write me.  I'd love to connect with others that also suffer from
 dizziness, fatigue, and that vague "out of it" feeling that we get.
 Take care and remain hopeful.  Anne

Have had "drop down" dizzy days for years and years.  Frequency used to
 be 4-6 times a year, but now once every 2-3 years.  I'm not seeking
 help anymore because nothing has worked.  Meniere's and head injury are
 both in my past.  Just hole myself up on days I can't function.
 MARLA

Diagnosed as BPPV for over 2 yrs.Most days lightheaded,some days cant
 get out of bed.45 year old married family man who can't make plans,
 playing tennis,softball,riddin my Harley,and so hard to get up and work
 every day.Family and friends dont understand. Tried holistic,
 acupuncture,chiro,neuro,vestibular therepy,mri's and cat scans.No
 cures.Finaly seeing vertigo specialist in NYC.First Dr with intrest in
 helping me.On Valuim,it helps.Good luck to all.Please respond.

To add to previous note, I would suggest everyone with Vertigo to get
 complete blood work done(lyme,diabites,etc), get cat scan and mri done.
 At least this will eliminate some of the few thing Dr can do.My
 experience is holistic can help but there are no cures.Mecklize and ves
 therapy can help some but did not for me. Major ear surgery is no
 guarantee. Find a Dr who specializes in vertigo or you wil get the
 usual,"There is nothing you can do". They might be RIGHT! Good luck!

Hi, Iam 43 and have suffered from BPPV for 6 years and think I am going
 crazy half of the time.  I have tried every manuever that was made
 along with the exercises and nothing works.  I get headaches,swirling,
 nausea, blurred vision and just feel awful. I am on Klonopin and now my
 doctor thinks I should consider a surgery called Semicircular canal
 occlusion.  Has anyone heard of this / or had had it?  It is a laser
 procedure of the semicircular canal.  Please write!

I'm a new patient although I've had this problem for 30 (undiagnosed)
 years.  I would like to speak with someone with similar symptoms.  I
 haven't been officially diagnosed yet but I am starting with a balance
 test this week.  Then on to a neurologist.  Please send me an email if
 you have symptoms of feeling off balance mostly in stressful
 situations, sometimes after doing a lot of reading or commputer work,
 dizziness sometimes upon awakening in bed, sometimes for no reason at

I have had a problem with vertigo for the past year and a half.  I need
 help to learn how others have dealth with this problem.  I have been to
 doctors, specialists, and they always rule out what the problem is not,
 and not really what it is.

I have had a problem with vertigo for the past year and a half.  I need
 help to learn how others have dealth with this problem.  I have been to
 doctors, specialists, and they always rule out what the problem is not,
 and not really what it is.    Does anyone have a support group around
 Kennewick, Washington?  I would desperately like to talk to others who
 have this problem and have learned how to deal with it.

It is very frustrating to know that this is a condition u just have to
 "LIVE WITH". Ive had this feelin of bein spaced out& dizzy & fatigued
 for 7yrs I was diagnosed w/ labrynthitis 1995, meds,antivert & niacin
 dont help.My grandad had Menieres, my dad has undiagnosed symptoms &
 now my 3yrold daughter has spinning episodes upon wakin.Is this
 syndrome hereditary?HOW CAN I TEACH MY CHILD TO LIVE WITH THIS WHEN I
 CAN BARELY DEAL WITH IT MYSELF.HELP,ADVICE APPRECIATED!!!!

Thank God i've found others like me. Anyone in the UK found anyone of
 help or anything of use. I have permanent imbalance plus chronic
 fatigue but luckily no nausea.

Hi Sue from Niagara Falls.  I took your advice and have been seeing a
 specific chiropractor.  I also have to misaligned vertebraes in the
 neck C1 and C5.  He told me C1 is pressing on nerves that lead to the
 inner ear and the skull.  After 6 alignments I am 70% better.  I still
 have 4 to go.  Thank you for your help.

Hi Sue from Niagara Falls.  I took your advice and have been seeing a
 specific chiropractor.  I also have to misaligned vertebraes in the
 neck C1 and C5.  He told me C1 is pressing on nerves that lead to the
 inner ear and the skull.  After 6 alignments I am 70% better.  I still
 have 4 to go.  Thank you for your help.

I am an RN in a small town with a hearing and balance center.  I test
 patients with dizziness and balance disorders.  I then place them in a
 vestibular rehabilitation theapy program which has been very
 successful.  I have tested and therapied over 400 patients since I
 began one and a half years ago.  Feel free to E-mail me at
 rewell@mychoice.net  Sincerely,   Rhonda Ewell

Hey to all the other dizzy people out there.  I know, it sucks, but I'm
 trying to keep my sense of humor.  It sure helps me cope.  I've got
 BPPV and I am in vestibular rehabilitation and doing exercises twice a
 day.  It seems to be helping some.  I'm looking for people who would
 like to chat about symptoms, treatments, coping tips, etc.  Please feel
 free to e-mail me.  I'm a 26 year old graduate student.
 alborde@soc.emory.edu

I am a new sufferer.  My inner ear got zapped by overdoses of gentomicin
 and vancomcin.  My primary problem is bouncing vision, its been over
 six months and its not getting better.  Does anybody have any success
 stories with this particular problem????

Hey John, Do your eyes jump around, making it difficult to read and
 giving you headaches?  I have BPPV and I'm in vestibular rehabilitation
 and I do eye exercises twice a day.  So far, they are really helping me
 get my eyes under control.  Are you seeing a physical therapist or an
 occupational therapist?  I highly recommend seeing someone who
 specializes in this sort of thing and getting some exercises.

I am an RN in southern Illinois, in a small town of 10,000 people.  I
 have a balance & hearing center and test and therapy people with
 vestibular disorders and or dizziness.  I have seen over 400 people
 since I started in the past 1 and a half years.  I have seen a lot of
 success and hopefully I can be of assistance to you.  Sincerely,
 Rhonda Ewell RN

Have had vertigo off & on since I was a frequent flyer who suffered
 from repeated sinus infections.  Have spells a 2 or 3 times a year
 which  last a few weeks. Symptoms are spinning, especially when getting
 up in  am & when I move my head fast, fatigue & the "brain fog" that
 others  mentioned.  At its worst, I have fallen due to the vertigo. Saw
 int.  med & ENT - less than helpful.  Can anyone recommend an MD in
 Atlanta,  Ga. who is good at this stuff & listens?  Thanks!

This is my first episode with vertigo and an anxious to learn as much as
 I can.  At this point, I am not sure what is causing me the problems.

Hi Carol, I have a great Dr. in Atlanta.  Here's the info:  Atlanta Ear
 Clinic, 404-851-9093, Dr. Ronald Steenerson, Gaye Cronin,
 www.atlantaearclinic.com.  Gaye is an occupational therapist and she is
 wonderful.  We are working on treating my BPPV through exercises.  I
 had a doctor before who said that I had to "just live with it."    You
 won't find any of that crap here.  If you want to e-mail me personally,
 feel  free to: alborde@soc.emory.edu.  I would love to connect with

I had a pretty bad episode of vertigo about 8 years ago. Went to many
 doctors and nothing could relieve my problem.  Slowly it has dimmished.
 The only real problem that I have now is when I drive.  I feel light
 headed and have problems when I drive in narrow roads, like barriers on
 the road.  On Bridges, I tend to freeze and panic.  Otherwise I can
 drive excellent.  This condition is affecting my quality of life since
 I cannot take my family on long trips.  I am thankful to the Lord, that

My husband has just experienced chronic vertigo and teh ringing in his
 ears has doubled plus his hearing is a little worse.  Will his
 dizziness continue?  He still sees double after 6 days. He can not get
 out of bed without almost falling over.  Will he continue in this way?
 Will he eventually stand tall.  What does my husband and I have to look
 forward to? Constant bed care?  Thanks, Josie

My husband is suffering from vertigo, diplopia. The specialist has told
 him to stop taking all medication and learn to walk with his dizziness.
 Eventually it will leave. If not he will recieve a ENG (a test to see
 into the cochlear)

I'm new to the internet, with vertigo for 1 1/2 years.  Hearing loss,
 vertigo and no one to talk to. Just starting treatment, trying not to
 take antivert--love to hear from anyone!!

I'm new to the internet, with vertigo for 1 1/2 years.  Hearing loss,
 vertigo and no one to talk to. Just starting treatment, trying not to
 take antivert--love to hear from anyone!! I just started reading
 comments and am wondering does everybody know about the Epily manuever
 they do at the University of Minnesota.Helps positional vertigo 90%of
 time.

Hi there everyone,  I'm looking for you opinion on my situation. For 1
 1/2 mnth I have been suffering with vertigo.  My doctor is resisting
 sending me to a specialist. The vertigo started out with a violent
 attack,( couldn't walk, head very dizzy, sick. Rested for about 3 days.
 I did start to go back to my normal schedule as best I could. Since
 then I have dizziness mosty when rolling over in bed and it is the
 worst when I want to get up from a reclining position. Mornings are the

Now that I think about this, I have TMJ(severe jaw popping),frequent
 dizzy spells, loss of vision, ear pressure, neck and back pains,and
 those violent,total loss of control dizzy spells. Everything kinda
 started happening 2-3 years ago.. does this sound familiar to anyone?
 Is there anything I can do?  Is this vertigo?  I'm desperate...  e-mail
 me.  Missy

It started in 93.  I stopped taking Antivert in 94 when I wanted to get
 pregnant.  No occurance of Vertigo until my 2nd pregnancy in '96.  It
 was awful!  No one believed that my symptoms were from BPPV, even my
 OB-GYN didn't know what Vertigo was!  I was in a fog the entire 9 mos.
 and beyond.  Dizzy and naseous all the time, frequent Vertigo, vomiting
 and diarreah, off balance, anxiety, and panic attacks.  Dr. said I
 would have to live with it while pregnant.    I was so afraid I would

I was so afraid I would have vertigo during delivery, but thank God I
 didn't.  I got through it with the Grace of God and support of my
 family. Now it's back and I'm ready for an agressive aproach.  I will
 beat this!  I refuse to live my life this way!  Contact me if you are
 thinking of having a baby.  It was worth it, the joys of having a child
 are worth any obstacles!  Especially if you have support from your
 family and Doctors.

Hi everyone!  Just wanted to tell you that I have completed 10
 adjustments by my chiropractor and I am really starting to feel better.
 I previously told you that I had a misaligned vertebrae in the neck (C1
 to be exact) which was pressing on nerves.  It took a while but relief
 is here.  No more spinning and nauseau.  I am having 5 more adjustments
 than will see him once a month for maintenance.  I have improved 80%.
 Hope some of you will try this alternative.  If you have any questions

have been dizzy, light-headed and nauseaus for 3 months. 31, mother of a
 one yr old. diagnosed w/ vestibular processing disorder..possible viral
 infection. tried valium, meclizzine, now taking klonopin. nothing
 works. doctor says that this will go away, minimum of 6 months. can't
 drive or work, going on disability tomorrow from a job i love. am
 extremely depressed. all i want to know is, will this really just go
 away and resolve on its own like the dr says??????? please e-mail me..

Hi everyone!  I saw my Doctor today and I asked him if he had heard of
 vestibular rehabilitation and he hadn't.  He reffered me to a
 neurologist.  He promised to research recent findings on vertigo and
 get back to me, yay!  I went armed with everything I've printed out
 from this website!  He gave me his own webpage which actually led me to
 a great link, Achoo Healthcare Online, I searched vertigo and got
 WWW.Mayo.edu/vest-rehab/ . . .Check it out!

have been suffering with dizziness, headaches, etc for 12 years.  been
 reading others experiences, but no one has said anything about
 surgeries. i have had 2.  it was called decompression of the 8th
 cranial nerve.  had it done on both sides of my head. don't recommend
 it.  my symptoms have not improved.  everyday is a struggle. i thought
 i was the only one with this horrible affliction.  it helps knowing
 others have same problems and that i'm not crazy.  drs told me nothing

i forgot to leave my e-mail address.  would like to hear from others who
 have had the same surgeries.  i've also tried various drugs and i
 currently take valiums.  they seem to help a little, but not enough to
 make me feel "normal" by any means.  i am always tired and have all the
 same symptoms others have described.  does anyone else feel like others
 think they use their dizziness as exuses not to do things?

I have had vertigo, upset stomach, much belching, impaired vision all at
 the same time and don't know which part leads to next.  Can stomach
 problems lead to vertigo?  It seems to start when i eat.  Does that
 make any sense to anyone?  Help!  I also ave allergies and sinus
 problems that could contribute!  Thanks,  Mike

Anyone know of vertigo induced on take-off in commercial aircraft?
 Usually some 30 minutes after take-off itself, as the cabin pressure
 adjusts. Only time I ever experience it.

I have been getting this dizziness spell for a year already.The 1st time
 it occur was really bad.I would get neausea and have this floating
 sensation.  Doctors done many test on me...blood test,MRI,CT scan.Been
 taking medication but have recently stop.Thou the dizziness is not as
 bad as the last time,it still keep bothering me alot as it keeps
 comming again and again.  I do not now what to do.Doctors told me that
 i will have to live with it or may be it will just go awayby itself as

 Diagnosed with Menieres Syndrome in 1981. Was given Rx for
 vasodiolator-NO HELP. Surgery at Emory University-Tack Procedure-
 Elevated problem to everyday dizziness.Had surgery in Macon GA in 1982-
 Secondary labrynthectomy-some help-years passing by seem to help-1997
 had severe attack-has been constant battle since-have had allergy
 problems for entire duration of problem(1980-Present)

 Had total hearing loss in left ear since onset of Menieres syndrome
 Have taken Antivert-Ruvert-Valium, still have problems with vertigo.

I had a stapedectomy five weeks ago and have been experiencing
 dizziness, fatigue and "brain fog" ever since.  Meclizine,
 Promethazine, and Dramamine have not helped.  Would like to believe
 that I will be back to normal soon.  Has anyone ever completely
 recovered from any of the "dizzy disorders"?

I was wondering if anyone's dizziness has felt like mine--I get short
 "jolts" of dizziness every few seconds to few minutes which kind of
 feels like the sensation you get when you are frightened for a second.
 It actually travels down my head through my arms to my hands like a
 bolt of electricity.  It feels even stronger when I move my neck or
 even move my eyes back and forth!  I also have nausea.  Desperately
 seeking HELP!! Thanks. MKeisha@aol.com

Are you taking the vitamin CHROMINUM PICOLINATE 200 mcg? Is it an
 ingredient in your daily multi-vitamin? STOP TAKING IT!!! Chromium
 effects your insulin process & can cause SEVERE DIZZINESS, SPINNING,
 CONFUSION, EAR BUZZING, etc. Twin Labs Vitamin Manufacturer has even
 included a warning on their chromium label. It is especially dangerous
 to those with diabeties or hypoglycemia.

Does anyone feel like the floor is moving? Feel like you're riding an
 elevator or riding on a boat? No spinning just weird sensation of
 walking on a matress at times. Would love to here from people who feel
 this way. This has been a constant sensation for me for the last 8
 months.

Have had BPPV on-off since 1975.I was hit on my head by a wave at
 VA.beach. Last 4 years its been very active. Been treated at Mayo in
 JX.FL. in 1995, but sympt. back.Looking into Dr.Li in
 Jupiter,Fl.Suppose to be very good. No ones mentioned the problem of
 intimacy.All of us who can't relax in a horizontal position should
 understand.I'm also afraid of winding up on disability. So hard when
 people don't understand how you feel.I'm glad I'm not alone,but sad

A question for members with Meniere's:  Do any of you suffer hearing
 loss in the high frequency range and not in the lower?  I've read
 nothing that says Meniere's causes loss only in the lower frequency
 range, but my ENT doesn't want to say definately that I have Meniere's
 because I have no loss in the low frequency.

woke up last Feb 3rd, room spinning could not even walk. Went to bed
 perfectly fine  found out that I lost 100% of my hearing in right ear.
 Have had every test, still do not  know what caused it. Lots of other
 symptoms since that day. Tired of dizzines and balance problems.
 Anyone out there been dx'ed with fibromyalgia. Kathy

My 83 year old mother suffered a sub-arachnoid hemmorhage and stroke
 about 6 months ago.  She is constantly dizzy and vomiting to the point
 where she is being sustained by a feeding tube and unable to continue
 physical therapy.  When she is moved, i.e., transported to and from bed
 and wheelchair, sits up to eat, does PT, etc.  she becomes too dizzy
 and nauseous to complete the task.  We have ruled out inner-ear causes
 and are looking at the 8th nerve in her brain where her aneurysm

I have been sent to therapy after a diagnosis of "vestibulopathy", a
 constant dizzy, swimming feeling. Has anyone had any experience with
 therapy for this disorder? Thanks! Sharyn

I HAVE SEVERE DIZZY SPELLS APPROXIMATELY ONCE A MONTH SOMETIMES MORE.
 THESE SPELLS CAUSE VOMITTING AND CAN LAST ANTWHERE FROM 6 TO 10 HOURS.
 I WIND UP LOSING THE WHOLE DAY.ALL I CAN DO IS LAY STILL IN THE DARK.
 I HAVE A HISTORY OF EAR PROBLEMS AND HAD CHOLESTEATOMA.MY DOCTOR HAS ME
 ON DIAZAPAN AND MECLIZINE, BUT THEY DON'T ALWAYS HELP.

Last October I fell and was diagnosed with a neck and head injury.  My
 neuroligist diagnosed me with an inner ear injury.  I am a teacher and
 had to quit working for two months.  I went back to work but it is very
 difficult to teach well.  I often get very dizzy, nauseous, very
 irratable and have a hard time concentrating.  One thing I have noticed
 is that I must get plenty of rest.  If I don't my symptoms get much
 worse.  I would value anyone's advice.  Thanks!!

Has any one used Verapamil and had any results of it helping vertigo
 symptoms? Please email me if you have. Thanks    Gep

I was first diagnosed with BPPV about 15 years ago.  I visit this site
 when I'm in the midst of a bad episode and the comments left by others
 help me a great deal.  Unfortunately, the most common theme  in each e-
 mail is one of frustration and even desperation.  There are no "magic"
 pills, vitamins or procedures that have helped me in any measurable
 way......but I keep looking.  What else can we do?

(sorry for my english)  I have been vertigo more than 2 years, found
 more than 7 doctors, I found the   1. SERC :- name of drug that can
 reduce vertigo  2. avoid drinking softdrink eg:- cola, pepsi,... (with
 carbonate)  3. avoid looking to computer for long time  4. avoid hot
 weather and non-circulate climate eg:- non-circulation room  5. go to
 bed at 0800PM and wake up around 0430AM  I hope all of these can reduce
 your pain....  Who has other reccommend pls. tell me too..  Thanks

The fullness in my head started 6 years ago.  I have not had a "normal"
 day in the last 6 years. I'm suprised I've kept my job, let alone my
 family!!!

I didn't read eveyone's note first. But I noticed almost eveyone has the
 dizzy feeling.  I never feel dizzy or sick, just lightheaded and not
 able to concentrate on what people say.  I feel great for the first
 hour I'm awake in A.M.  Then it goes away until I lay down to go to
 sleep.  Does this sound like anyone else??Will ber glad to chat!!!Guess
 I'm not crazy after all!!

ihave been sufferring from vertigo since 1996 after airplane travel and
 great deal of stress .well i have been throught lot of testing , MRI
 cat scan blood work ,they ruled out that i have vestibular nerve
 damage,so they suggest that  istart withPT to see if it works then in
 case didnt work ,i will have to go for surgery. iasked for second
 opinion the second doctor didn,t aggre ,he said it,s very risky .so w
 hat i have been doing sinse theni take clonopin because  lot of people

I have bilateral Menier's--and another possible autoimmune disease along
 with it.  I take meclizine/valium when I have an episode.  They don't
 cure it, just make it somewhat bearable.  Any suggestions?

Have had Bilateral Meniere's for 2.5 years.  Have recently had many
 episodes back to back.  I take meclizine, and valium when I have an
 episode.  It's not a cure, and it leaves me feeling very drugged, but
 it makes it somewhat bearable.  Anyone else have any suggestions?

Does anyone have vision problems & dizziness? My depth perception is
 totally screwed up. I can't write or read well. I lose words, thoughts
 (I'm a teacher!) The occupational therapist says these symptoms aren't
 "normal". Been to ENT, Neurologist, blah, blah, blah...now what?

I have finally found a source of good info here!  I had my first attack
 of vertigo 17 yrs ago.  I have been through many doctors over the
 years.  I was just finally given the answer of Meniere's.  As of 4
 months ago I have had to take a leave of absence from work because I am
 unable to function due to irretractable vertigo and dizziness.  I have
 bilateral Meniere's and am looking for info from sufferers of the same.

I was astounded to see as many people in the same boat as I.  Annual
 bouts of dizzy spells for last 20 years lasting 1-3 wks. at a time.
 Latest bout developed instantly when I tilted my head back to drain the
 last few drops of a soft drink.  Went to an ENT once who found nothing.
 It appears that homeopathic and chiropractic treatments offer the most
 promise.  Would appreciate hearing from you especially if you had
 positive results from some form of treatment or therapy.

 I was just diagnosed with vertigo. I am wondering what causes it and if
 there is a cure. I am only 25 and have a history of allergies but
 recently my condition has gotten worse and some days i can not even get
 out of bed. My doctor said this is a virus but I have also heard this
 is something you could always have. Please help.

My father suffers from vestibular dissorder-I havent really taken the
 problem seriously until now.  He's 67 years old and has been falling
 over.  Is there any help or hope of help and where can I find it.    I
 hate to see him live out the rest of his life in fear as he has   since
 I can remember.  Please-any help would be appreciated

Hello, any other kidz out there? I'm 13. I often suffer from attacks of
 dizziness. Sometimes, it gets so bad that can't even get out of bed.
 Once, it got so bad that I had to stay home from school,  in bed for a
 week. It's not fun. I don't know what to do about it, so if u have any
 ideas on how to help, please write. =*)

 Please add my name to your list. Thanx.

 Please add my name to your list. Thanx.

Over a period of time, I found out that tanin in tea causes dizziness in
 me. Since avoiding taking tea, I haven't had an attack so far.Touch
 wood!

The impression of my most recent visit to the doctor was vestibular
 neuronitis - probably bilateral - if anyone has had this, please send
 me email or call me at (949) 496-8316 to discuss.  I would love your
 insight.  I haven't had the full audiological MRI - but the brain MRI
 didn't have show anything wrong according to my 2 doctors.

In 1994 I had brain surgery to remove a benign tumour. Since then   I
 have been getting over short-term side-effects. Only in the recent
 few months have I realised that the dizziness, nausea,unbalanced and
 a brain fogginess is not going away. I am studying to be a Radiographer
 and whether I can complete the course is questionable. It is good to
 find I am not alone. Thank you.

Have had vertigo for eight years. No cure. Worse in summer and spring.

My mother is 83 year old, totally blind (from an accident when she was
 five years old) lives alone and is very independant.  She has been
 complaining of dizziness for about over a year but about 2 months ago,
 she woke up one morning and couldn't get out of bed.  She said she felt
 like she was spinning.  We've been to the emergency room, several
 visits to an Internist and one to her ENT.  She's had bloodwork and an
 negative MRI.  What do I do now, please help!!

I have had bilateral menieres for 5 years but only diagnosed 5 months
 ago. Was treated for everything else inc. heart attack! Have vertigo,
 constant nausea,deafness, tinnitus,brain fog and work for myself but
 am wondering for how much longer. Was a great relief to be diagnosed
 'cause I thought I was going mad. However, I still have to get through
 the  days. Definitely limited my life style. Serc has helped - taken
 the edge  off it. Great relief to know I'm not alone with it.

I have had bilateral menieres for 5 years but only diagnosed 5 months
 ago. Was treated for everything else inc. heart attack! Have vertigo,
 constant nausea,deafness, tinnitus,brain fog and work for myself but
 am wondering for how much longer. Was a great relief to be diagnosed
 'cause I thought I was going mad. However, I still have to get through
 the  days. Definitely limited my life style. Serc has helped - taken
 the edge  off it. Great relief to know I'm not alone with it.

Me too ! Dizzy, nausious, lack of concentration, tired, feels like
 gravity has doubled, worse first thing in the morning. Saw
 neurologist, ENT specialist, family doc, emercency room once.  Have
 taken meclazine. Done Baer, EEG, ENG tests - showing nothing.  Going on
 for 5 weeks. Slight improvement after 2 weeks with no  change after
 that. Becoming quite annoying !!

Dizziness, vomiting, unbalanced, can't sit up...WHATS WRONG WITH ME?
 Medical test are all normal!  WHATS WRONG WITH ME?  Help...

 I truly sympathize with everyone. I had a spinning episode in May and
 for a while never felt I was completely there and now feel about 95%.
 It drained a lot of enery out of me, especially my eyes. I went around
 with sunglasses. A lot of rest is helpful. I have been consuming Cell
 Tech's super blue green algae and increasing the consumption helped
 increase my energy level. Algae is a remarkable food that I have
 discovered.  If you need more info, you are welcome to write to me.

I have had three incidents of severe imbalance over the last year. They
 coincide with a cold or sore throught (infection) and times of high
 stress. I feel very weak,  and sometimes want to faint. I have had all
 kinds of ear, eye, blood tests but nothing has been found. The bouts
 last around 4 weeks. Antibiotics don't seem to help. I want to know if
 anyone has experienced something like this. Would appreciate it.

I suffer from dizziness and fainting spells. It is just good to know
 that I am not the only one.  The most humiliating times is when it
 occurs in public.  Do to this illness, I am sometimes scared to travel
 to and from work alone.  This illness has also caused me to faint on my
 face and break my jaw.  Anyone who feels the need to talk, please feel
 free to e-mail me.  Good luck to all!

I, like many of you, suffer from dizziness from quick movement or even
 fainting, which is stimulated my heat.  This illness causes me to
 sometimes be afraid to travel to work by myself.  This illness has
 caused me to faint, fall on my face, and break my jaw.  These spells
 happen to me at least once a day, sometimes more.  Anyone who wants to
 talk, feel free to e-mail anytime.  GOOD LUCK TO ALL!!!!!

I have had vertigo? for six months and all tests have came out normal.
 My problem is driving which I have not driven by myself since.  I have
 a very hard time drivng through a right curve.  I feel like the car is
 moving toward the right and will flip over any minute.  I move my body
 as if I'm on a motorcycle.  I just had a baby nine months ago, and had
 been stressed out about work and other personal problems.  Have other
 people had anxieties or panics resulting in this condition?

I have been dizzy and nauseaus for the past week since going to San
 Francisco  for the weekend.  I started to get woozy and queasy in SF,
 but then   since getting off the plane, I am feeling off-balance.
 Since a boating accident  20 years ago, I have been prone to BPV, bouts
 of positional vertigo.  Is there any relief when this acts up?  I've
 heard Bonine is the best.  What do I do?

have been suffering from rotary vertigo since 1993. perilymphistula
 repair, 1994.  still have attacks of verigo lasting from several
 minutes to several day.  both mild and severe.  the best therapy i
 found was tai chi.  daily practice almost eliminated the problem.  i
 stopped practicing tai chi, the vertigo is back.  i was amazed that
 there are so many out there with the same problems.  good luck to all

I have been dizzy for 30 years, since I was 15.Went for all the tests,
 had all the diagnoses until about 1980--I am not crazy, I do not accept
 Meniere's Syndrome, allergies, or any of the other many answers the
 doctors charged me thousands for. None of their "answers" were right,
 only expensive. I have managed to learn to live with this; you can
 learn to do many things in 30 years. I do not know what "dizzy-free"
 is.

Wow! I did not realize benign vertigo/middle ear infection, etc. was
 such a tremendous problem. I was diagnosed yesterday with benign
 vertigo and am having difficulty looking at the computer screen right
 now.  I don't get dizziness until I'm up and around for a few minutes.
 The doctors in the ER gave me Antivert and told me this problem would
 resolve in about 2 weeks.  Like others on the bulletin board, I too
 just recently returned from a cruise (almost 60 days ago).

I was diagnosed wtih benign vertigo just yestrday. Like others on the
 bulletin board, I too just recently went on a cruise (almost 2 months
 ago, for the first time). I pray that this situation is only temporary
 and that I can begin to enjoy life once again. I did not realize that
 this was such a problem with so many other people.  I feel very dizzy
 and nauseated right now and just want to go back to bed...I'm off work
 for the next few days; hopefully I'll feel better next week.

Started spinning out in March.Very unbalanced after that.Saw Ent.Tests
 neg.His recommendaton was to walk..walk....walk.Vestibular therapy
 really does work.What makes you feel uncomfortable is what you have to
 do to retrain your system.It takes a long time and EVERY DAY committ-
 ment and positive attitude.I walked with a stick for 3 months.Now I
 walk EVERY DAY 3 miles without one.Sometimes I even run.The brain is a
 complex system and sometimes there is no answer.

Started spinning out in March.Very unbalanced after that.Saw Ent.Tests
 neg.His recommendaton was to walk..walk....walk.Vestibular therapy
 really does work.What makes you feel uncomfortable is what you have to
 do to retrain your system.It takes a long time and EVERY DAY committ-
 ment and positive attitude.I walked with a stick for 3 months.Now I
 walk EVERY DAY 3 miles without one.Sometimes I even run.The brain is a
 complex system and sometimes there is no answer.

Started spinning out in March.Very unbalanced after that.Saw Ent.Tests
 neg.His recommendaton was to walk..walk....walk.Vestibular therapy
 really does work.What makes you feel uncomfortable is what you have to
 do to retrain your system.It takes a long time and EVERY DAY committ-
 ment and positive attitude.I walked with a stick for 3 months.Now I
 walk EVERY DAY 3 miles without one.Sometimes I even run.The brain is a
 complex system and sometimes there is no answer.

Started spinning out in March.Very unbalanced after that.Saw Ent.Tests
 neg.His recommendaton was to walk..walk....walk.Vestibular therapy
 really does work.What makes you feel uncomfortable is what you have to
 do to retrain your system.It takes a long time and EVERY DAY committ-
 ment and positive attitude.I walked with a stick for 3 months.Now I
 walk EVERY DAY 3 miles without one.Sometimes I even run.The brain is a
 complex system and sometimes there is no answer.

I think problems with the inner ear is a debilitating factor in anyone's
 life.  Since February of this year I have been suffering vertigo and
 dizziness.  I went to over 10 doctors from the emergency room to my
 family physician to a ENT specialist and not one can tell me what is
 wrong.  I just graduated from College and started a new job recently
 and due to this sickness which is getting worst I'm scared I may have
 to quit.  This disorder is very depressing.  I wouldn't feel so bad if

Hi, My name is Mo,I have had vertigo now for 7 months all the time it
 never leaves me,just started to drive(barely)can't  walk at night or
 drive if anyone has any information on this I would really apprecitate
 it.Doctors don't know why.medications don't work,had all the
 tests..please email me thanks..

I have been pleased with care provided at University of IA Hospitals &
 Clinics, Dept of Otolaryngology.  Have been without vertigo/spinning
 spells since endolympatic shunt 3 years ago.  Good luck.

I'm leaving this note to let it be known that I have recently recovered
 from vertigo, and hope that whovever reads this gains some comfort from
 that.  It was very depressing and difficult while I had it, but it
 gradually got better.  The anti-vert meds didn't help much. But a
 positive outlook did.  Keep your chin up and try and keep healthy
 otherwise.  My heart is with anyone who is struggling with a vetsibular
 disorder.  I know how draining it can be.

I just wanted to leave a note to let others know that vertigo can be
 overcome.  I was very hard hit when I had it and then I got better.  I
 attribute that to a positive attitude, mostly. I was very depressed
 until a friend talked me out of it.  Stay as healthy as possible, and
 keep your chin up.  It helps! Good luck.

Can anyone give me information about the correlation between   elevators
 and vertigo? I've just started a new job where I ride  an elevator.
 After the 3rd trip or so in the day, I feel   an up & down dizziness
 afterwards. I'd like to know if there is  a link between the two, and
 if it's going to get worse with time.  Thank you.

I have had severe dizziness, fatigue and foggy head for about two years.
 I have had a few colds and the flu.  They never seem to go away
 completely.  I have a continuous cough and runny nose and blocked ears.
 I work at sort of half mast.  The symptoms are not just periodioc.
 They are continuous.  I have triled the usual antibotics, herbal
 medicins, DR. Cabots liver cleansing diet, no salt and eight hours of
 sleep daily. Nothing has worked.  Please help.

I did not know so many suffer from dizzy spells. I have been dizzy ever
 day for almost a month. It Started Aug 21th 1998, but have had small
 warnings of dizziness  before. I thought it was my allergies. One
 morning  had a small spell thought it would pass. By 3pm that day i
 could not stand up or walk or see.  was in the ER room in the hospital
 6 hours told vertigo go home and rest. That spell lasted seven days and
 i could not get out of bed A ENT doctor said you have rocks moving in

I have been experiencing these constant vertigo symptons since I was 12
 years old. Now I am 23 and symptons only get worse everyday. Sometimes
 I think it's just a mental fear of the symptons but it is hard for me
 to beleive so. I have had every kind of test with no specific diagnosis
 found. Life is changing constantly for the worse in terms of being able
 to function normally in any physical activity. I anyone know how to
 help me please e-mail.

What can be the cause of so many of us having this same vertigo? After
 reading all these comments I have to think that none of it has been
 caused by "bridge work" or "an airplane ride". This is striking people
 randomly all over the world.  Could it be left over biological warfare
 or some environmental cause? Why don't doctor's have any answers, they
 are seeing enough cases of it? And why are they handing out anti-
 depressants for this?  That's not a cure!  It's a cop-out!

Hello..I am 27 years old and have had vestibular neuronitis since 1991.
 It has been very hard dealing wih an invisible illness, and not knowing
 when it will go away.I was unable to go out for almost a year, had
 trouble even reading books. Explaining to friends and family how I
 felt, was difficult; and for me that was the hardest part. I still have
 this dizzyness and occasional spinning, but it has gotten much better.
 I too have had good experiences with ginger, wich i took in the form of

....ooops... The ginger came in the form of pills, against travel
 sickness.  I am glad to have found this page, and i wish you all my
 best.

Has anyone been helped by vesribular rehab.? I am only affectednow and
 then,I go weeks feeling fine, then wow!! for a week or more I'm off
 balance again. Any info. would help.Thanks,
 SUZ

It started Dec/ 97 and has gotten worse antivert little help, left ear
 has problems after reading info. I feel destain to be this way
 forever.My life has changed, memory loss,dizzy,sick to stomach, feel
 drunk all the time!! Whats next???

FOR SUSAN GR MI USA. VEST REHAB IS WORKING FOR ME.I WALK EVERY DAY   AND
 DO OTHER VESTIB EXERCISES.MY SIS IS A PHYSICAL THERAPISTS AND   HELPS
 ME OUT .DEPENDING ON THE SOURCE OF YOUR PROBLEM YOU MAY WANT TO  HOOK
 UP WITH A P.T. OR YOU CAN GET SOME INFO OFF THE VEDA SITE.DON'T  BE
 DISCOURGED AND JUST KEEP WORKING THRU IT.I'M 90% BETTER AND HOPING
 THAT IT LASTS.ITS BEEN 4 MTHS.ITS DEPRESSING AND SCARY AND I SURE DO
 SYMPATHIZE WITH EVERYONE OUT THERE. GOOD LUCK DONT GIVE UP.

My initial dizzy spells started in 1980 after being on erythromycin  for
 Strep throat. Initially bouts were short and infrequent . Over the next
 few years symptoms progressed slowly until a was having frequent
 severe ( laying on the floor, vertigo and vomitting). Eventually
 diagnosed with Meniere's - it was a relief.'85  e.l. shunt,  better for
 a while.1989 had labyrinthectomy,long recovery,but am now almost
 normal. There is hope!  Not impressed with Cleveland Clinic.

can anyone in vest. rehad email me some of the exercises to help.  My
 busy fatherinlaw was recently afficted with a ?inner ear problem.  with
 dizzyness, nausea, spinning.  Sound alot like the above posts I hope
 this isn't going to be an ungoing problem for him as it is for you all.
 A list of things natural and medical would be greatly appreciated. I
 will pray for all of you!!

Have Meniers' disease since 96.Would have ten and 12 hour attacks  of
 violent vertigo.Could only lie on floor on side in fetal position  to
 get thru it without continous vomiting.Hmo Hip at that time gave  me
 run around.Out of work 5 mo.Changed health care.New ENT Dr.Pres.  NO
 SALT,CAFFIENE or ALCOHOL and diuretic.Took GINKO.Major attacks
 stopped.Still having dizziness irregularly.Job in jepardy.Use antivert
 Would like to connect with others with life affecting balance dis.

Have Meniers' disease since 96.Would have ten and 12 hour attacks  of
 violent vertigo.Could only lie on floor on side in fetal position  to
 get thru it without continous vomiting.Hmo Hip at that time gave  me
 run around.Out of work 5 mo.Changed health care.New ENT Dr.Pres.  NO
 SALT,CAFFIENE or ALCOHOL and diuretic.Took GINKO.Major attacks
 stopped.Still having dizziness irregularly.Job in jepardy.Use antivert
 Would like to connect with others with life affecting balance dis.

Yes we all have the same problem.  Mine has been here since jun/22/98
 Mostly I have found you must heal thy self,the Drs have no
 clue.Hungover  all the time,sleep is off,Pressure in my head. The
 pressure comes from my   neck. Its easy don't move and no problem,don't
 eat and you aren't naseous.  they told if I am not beter come back in a
 week. they told me this 5 times.

Yes we do all have the same thing. Being Dizzy all the time sucks.
 What should we call it,Labyrithitis,Bppv,Neuronitis,Vestable Hydrops,
 List list goes on. I whent to my doctor and told him what was wrong
 with me. He said It could be alot of things. Then 2 weeks later he
 came up with the same problem, Labyrinthtis. 1month he said,now 3,soon,
 to be 4months.They should just addmit it,they just don't know.

Frustrated? No I am beyond that. Doctors and Healers just tell us the
 truth!!We can take it.Have you noticed they all have that look in there
 eyes,like a dear just before the car hits it. They just don't know. I
 am one of the lucky ones, I have disability, atleast for now. But they
 don't want to pay...Realy. They would rather stick forms up our nose.
 If you feel the same E-Mail me at BrianA_Look@bc.sympatico.ca  Just
 mad!

one more thing. My girlfriend has been great up till now,but the longer
 I stay the same the more distant she becomes. I used to be 195 lbs of
 mussel.Now I am 175lbs of attrafee. Someone talk to me this is killing
 me  I would rather have Cancer,at least you have a idea of a
 treatment,brake my leg   they can fix that,give me gull stones they can
 remove that. Give me my life back  Let me function as a person,Let me
 think,Let me heal. I look older by   years in only 3 months. Someone

I was wondering if anyone else has tongue, cheek and/or facial  twitches
 when the dizziness hits.  I can handle the dizzy feeling  ok, but the
 twitching is getting to me.

anyone with vestibular dysfunction please respond i am new to this
 dizziness please help