1996 Archives of Vestibular Disorders Hotsheet
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Randy Atlas
Buffalo, NY US
rsa77@moran.com
Link: http://www.geocities.com/HotSprings/1177/
Greetings !! Some of you may already "know" me through VEDA and/or
"dizzinews", but please allow me to introduce myself anyway. I am
Randy from Buffalo, NY, and I started a support group for people with
vestibular problems. I also like to hear from others anywhere in the
Signed on: Thursday, June 13th at 9:37AM PDT
Randy (again... sorry !!)
Buffalo, NY US
rsa77@moran.com
Link: http://www.geocities.com/HotSprings/1177/
Sorry for the double-posting up there... Blame it on server problems!
As I was trying to say, I like to hear from others around the world
who have our type of problems, and who may need a friend to talk to,
etc. Please feel free to e-mail me and/or visit my Web page. Thanks
Signed on: Thursday, June 13th at 9:41AM PDT
Daniel E Forant Sr
USA
danny3@capital.net
After suffering with menieres syndrome for 4 years, I decided to get
gentamycin injections. This procedure stopped the attacks. Two excell-
ent mail groups are: "menieres@ears.com" and "dizzynews@samurai.com" I
posted this site on both mail groups for them to see. The quest for
Signed on: Thursday, June 13th at 3:31PM PDT
Catherine Stiteler
Greensburg, PA USA
marlee@westol.com @pm300.westol.com
Two coping strategies: 1. Acupuncture, very helpful to me. 2. When you
feel REALLY horrible, stare at one thing very close to you, and imagine
that you feel normal, picture yourself as normal. Works for me!!!!
Signed on: Thursday, June 13th at 7:44PM PDT
Randy (sorry to keep posting!)
Buffalo, NY US
rsa77@moran.com
I ran out of space for any coping strategies. I would recommend
joining VEDA (1-800-837-8428) and trying to find out if there's a
support group near you. If not, try starting one yourself. This has
been helpful to me in many ways. Please contact me if you are
interested in this. Thanks. :)
Signed on: Friday, June 14th at 6:13AM PDT
Joseph Fornefeld
Indpls. IN USA
I have found relief from Meniere's related vertigo with Betahistine
Hydrochloride (SERC).
Signed on: Sunday, June 16th at 1:45PM PDT
Tim Hailey
Reno, Nevada USA
tim@bally.com
I have tried the natural approach and have had some relief. I take
nutritional supplements which help but more specifically I take herbs
to remedy the dizziness. I have found that Gingko Biloba is helpful for
dizziness and Ginger Root for nausea. I have also just started with
Gentamicin injections to stop the vertigo completely. At this point,
it is too early to tell how effective this will be. I highly
recommend becoming a member of VEDA. The information and support
Signed on: Monday, June 17th at 5:31PM PDT
R Turri
Belmar, NJ USA
rturri@monmouth.com
Signed on: Wednesday, June 19th at 3:53PM PDT
Susan Kellett
Winter park, Florida USA
Lkellett @aol.com
Have had balance problems for four years. Two fistual suguries made me
worse. Gentimicin oast year, have partial compendation. Still working
with therapy. Have just started Tai Chi. Glad to help or hear from any
of you. Susan Kellett
Signed on: Friday, June 21st at 2:21PM PDT
Kathy Antis
Easton, Pa USA
Signed on: Monday, June 24th at 4:06PM PDT
Z. Parker
Round Lake Park, Il USA
raven1@lnd.com
I have had a vestibular disorder for 8 years now 5 of those yours were
pretty good and the rest have been disabling. I am 29 years old and a
mother of three. I love to send and receive email.
Signed on: Monday, June 24th at 4:44PM PDT
Roger Williams
Tokyo JPN
roger@gol.com
Problems started four years ago, the day after I went on a Disney
"Space" ride with my son. Was immobilized for a few days, walked like
a drunk for weeks. Now I can even ride a bicycle although I notice I
can't keep as straight a course as I used to. Still get occasional
"staggers." Can I expect this to taper off? Or am I stuck with it? I
notice my hearing has deteriorated too. Doctors hear say nothing can
be done and I should be thankful it's not worse (I am!).
Signed on: Wednesday, June 26th at 3:06PM PDT
Valerie West
Charleston,SC USA
westvt@musc.edu
Diagnosed with perm.damage to right vestibular function, also BPPV.
Have done exercises successfully for BPPV. Feeling weakness,
discomfort with left side,limbs and some trunk. Sound familiar to
anyone?
Signed on: Wednesday, July 3rd at 1:55PM PDT
Dorothy Kammerer
East Northport, NY USA
Link: http://home.aol.com/DCFEFK
Need suggestions for coping with Meniere's syndrome.
Signed on: Sunday, July 7th at 3:15PM PDT
Susie Turner
Williamsburg, Virginia USA
Signed on: Tuesday, July 9th at 6:58PM PDT
Chris Snowberg
San Bruno, CA USA
snowberg@earthlink.net
There are so many different causes involved with the umbrella diagnosis
of vestibular disorder. For me, at three and a half months I feel like
I am back to about "seventy percent" of my old self. Since my hearing
is gradually returning, I tend to notice more sound that is distracting
rather than useful. Because of that, I keep sponge type ear plugs
handy. Many times, in noisy places such as restaurants or stores, it
makes a big difference in the overall impact of the outting.
Signed on: Wednesday, July 10th at 2:23PM PDT
Nancy Webster
Boston, MA USA
webster@umbsky.cc.umb.edu
I had no idea that this problem was so common and that there are sooooo
few answers.
Signed on: Thursday, July 11th at 1:07PM PDT
Jeffrey Mahler
Cleveland, Ohio USA
jef3@aol.com
In January 1995 I was diagnosed with Vestibular Neuronitis. I spent
about 30 months off-balance, dizzy, and walking around with a swimmy-
eyed feeling that made it very difficult to fix my gaze and to
perceive the world. But please know this: I have healed, and you will
too! If you suffer from Vestibular Neuronitis it’s probably just a
matter of time until you get your life back. Contact me if I can
support and encourage you in any way while you heal.
Signed on: Saturday, July 13th at 4:26PM PDT
Adrienne Burns
Berwyn,PA USA
burnsm@.philly.infi.net
I have a vestibular disorder for 3 years now. I first had vertigo,but
no nausea or vomiting when I was pregnant my 2nd. then it went away
mostly and then returned last year without spinning but instead "a
shift in perspective" when I would move in certain ways. Now I just
feel off balanceand get motion sick when I drive. I've been
diagnosed with Meuniere's,BPPV,or possible fistula. Anybody else in
a similar boat? My ENThas me on a diuretic and Ativan.
Signed on: Monday, July 15th at 8:35PM PDT
debbi thompson
brea,ca USA
My dad is suffering from dizziness. It has been going on for 6 weeks. We
think the cause is from an antibiotic he was taking by I.V. for 5 1-2
half weeks. None of his doctors offer any suggestions to cure. Can
someone make a suggestion. My dad is 78 years old. He has to use a
walker-never did before.
Signed on: Wednesday, July 17th at 9:24PM PDT
Richard Duncan
Tallahassee, Fl USA
I am just trying to gather information for my mother who has just been
diagnosed with Vertigo.
Signed on: Saturday, July 20th at 12:45PM PDT
Bob Lawrence
Mercerville, NJ 08619 USA
rlawre01@ix.netcom.com
It's interesting to find, as a new user, the type of info available on
the NET. I have had a lot of years with vertigo, dizzines, fear of
heights, etc. with no knowledge or hpe of a cure. If there is another
name for this disease, let me know and the type of doctor to contact
for help. Various members of my family, past and current, have the
same problem and I always thought it was a hereditary thing and didn't
look for help. Maybe there is some!!
Signed on: Sunday, July 21st at 12:17PM PDT
Cathy Gibson
Colo. Spgs. Colo. USA
I have severe vertigo which my Dr. has diagnosed as Vestibular
Meniere's, because I do not have the hearing problem. He wants to do a
steriod proceeder on me and I am woundering if anyone has ever heard of
it or had it done. Thanks a bunch!
Signed on: Saturday, July 27th at 11:48AM PDT
Cathy Gibson
Colo. Spgs. Colo. USA
Cathntom@ix.netcom.com
I would like to hear from anyone who has had Steriod treatments for
meniere's. What the side effects are and how good the results are.
Also if anyone has information about it. Thanks!
Signed on: Sunday, July 28th at 10:58AM PDT
Wes Wilson
Bedford, MA USA
I didn't really experience relief until my doctor prescribed meclizine
25 mg., taken at bedtime. I had dizziness/vertigo for at least six
weeks prior to this.
Signed on: Tuesday, July 30th at 6:02AM PDT
Tricia McBride
MI USA
Signed on: Tuesday, July 30th at 9:38AM PDT
Barbara Smith
Winter Springs, FL USA
apple@.iag.net
No diagnosis yet, suspect vestibulo-ocular reflex dysfunction/bilateral
vestibulopathy.Began 2/18/96 with ringing/hearing loss left ear. Two
weeks later that stopped and imbalance began.Vision blurry. Can
possibly trace symptoms back 14 years.Going to Dr. David Zee at Johns
Hopkins in Oct. Anyone been there?
Signed on: Monday, August 5th at 5:47PM PDT
Judy Lillard
Clifton, VA USA
I had my first bout with the room spinning last Tuesday morning. I went
to the hospital where the dr put me on IV meds. I am no longer
throwing up but still can not walk a straight line or sit up for long.
Lying down is best, no spinning. Reading your notes has really scared
me. Is it possible this could be temp middle ear virus as the dr
stated. How do you know, and what test should they have done. All
they did was test for stroke, my white blood count was a little high.
Signed on: Sunday, August 11th at 5:51AM PDT
raymond merigold
plainville, ma USA
rmerigold@aol.com
Signed on: Tuesday, August 20th at 5:02PM PDT
J.R. Crumley
Milwaukie, OR USA
jrc@involved.com
I am trying to find help for my 75 year old father. He has been
treated by Kaiser and the VA for the past 6-7 years. Treated, is
probably not the right word. He has not received a diagnosis for his
balance problems. No one seems to care to give an old man the tests
he needs for a diagnosis and treatment. They gave him B-12 shots for
5 years with zero results. Any suggestions? Please!
Signed on: Saturday, August 24th at 5:26AM PDT
Sonnet Dashevskaya
Austin, Texas USA
vdracula@i-link.net
Hi! I have had vertigo for 3 years. I had a cat scan and have been
diagnosed with sinusitus. M.D. thinks my vertigo might be related to
my sinus infection, or perhaps just benign positional vertigo. I
started an antibiotic a few days ago. Had a really bad attack today
just sitting eating lunch, about 5 minutes of intense spinning. Could
vertigo be sinus related? If it's positional, what can I do to help
myself? Thanks for your help and time :)
Signed on: Wednesday, August 28th at 3:59PM PDT
CASTELLO EOLO
GENOVA ITALY IT
Signed on: Friday, August 30th at 3:31AM PDT
Barbara Pinzka
Cincinnati, OH USA
bpinzka@partnersmc.com
Link: http://www.partnersmc.com
Join the newsgroups mentioned! Re: earplugs, I loved them, used
occasionally, but ended up (<1 yr) w/severe blockage/infection. Re:
steriods, they help me a lot altho I get a little wired. Doc very
concerned about overuse, Rx only when desparate, Surprised to see so
few shunts in survey. The surgery isn't the worst I've ever been thru
and it did help.
Signed on: Saturday, August 31st at 9:18AM PDT
Erik Simon
Missouri City, TX USA
ejsimon@flash.net
My Grandma has vertigo. I do not know all of the details but I know
that it sometimes can incapacitate her for a week at a time. It then
takes a while for her to feel 100%. She is a very active person and
enjoys dancing, etc. She tells me that it has been getting worse and
that she has tried many drugs. (I don't know which ones, but I believe
the list includes steriods.) If any one has information that can help
my grandma, I would be appreciate it. Thanks
Signed on: Monday, September 9th at 3:21PM PDT
C.M. de Crinis
California USA
cmdc@primenet.com
I first had dizziness about 10 years ago after starting a very
stressful new job but the attacks only happened a few times in the Am
upon waking. They were characterized by int ense spinning for a few
seconds. I was very tired afterwards. In April of this year I
unexpectedly had a bout of dizziness at work and had to go home. I had
one more episode about a month later. My ENT said it wasnt Meneres
since my ears were ok but he gave my ANTIVERT in case. He said if it
Signed on: Tuesday, September 10th at 2:51PM PDT
Mark Sutherland
Denver, CO USA
msuther523@.gnn.com
I am extremely discouraged, and sometimes feel like giving up. I am
dizzy and naseauted all the time. I hope the rest of you are doing
better than I.
Signed on: Sunday, September 15th at 9:45PM PDT
dre'
Australia
Spinning
Signed on: Monday, September 16th at 6:38PM PDT
Hilbert
ithaca ny usa
I am interested if anyone has ever gone on a cruise and gotten off the
boat but for 6 months later felt as if you were constantly swaying as
if you were still on a ship. This happened 4 yrs ago and it has
returned again after being on a floating dock for a 1/2 hour. I think
it has something to do with flying, having a cold and also being on
the water swaying. The last time it went away after i had a terrible
cold. I'm 2 months into this time and getting desparate. Any ideas?
Signed on: Tuesday, September 17th at 4:48PM PDT
David Doyle
Houston, TX US
Signed on: Friday, September 20th at 10:22AM PDT
Beverly Milazzo
Tulsa, Oklahoma USA
FMilazzo@ix.netcom.com
I would love to hear from anyone who has any typ of vestibular disorder.
I have Meniere's, have had it for 6yrs. I would like to join a support
group.
Signed on: Tuesday, September 24th at 11:16PM PDT
Elizabeth Martinson
Boulder, CO USA
emartinson@aol.com
I was in a car accident two years ago and suffered head trauma. After
a year of trying to go back to work, I finally took myself to a
neurotologist. I had middle ear surgery on both ears which repaired
leakage aroung the stapes. At the same time had an Arnold's nerve
transection-no more nausea!I had a Streptomycin infusion in one ear to
help sound sensitivity.Had the Epley manuever done - fixed BPPV 100%.
A lot of treatment, some success. Write me if you want to. I'll talk.
Signed on: Saturday, September 28th at 2:59PM PDT
Gail
Santa Barbara, CA USA
I have Mal de Debarquement Syndrome, and would be happy to talk to
others who have been diagnosed. Since an ocean voyage, (can be any
motion induced ) been walking like a drunk sailor, or rocking in
place, loss of some basic skills, spelling, math, concen tration,
eyesight blurry. Noise toleration very poor, grocery store makes me
"crazy". problem walking on patterned floors. Anyone Else? E-mail
FidgetyG@aol.com of FidgetyGMarzano@msn.com
Signed on: Tuesday, October 1st at 2:42AM PDT
JEANNIE
Virginia USA
gdday@erols.com
I was diagnosed with Mal de Debarquement after a ten day cruise. I have
been home almost SIX months . Some days are good and I think I am all
better but it returns. I have troule walking going to the grocery store
puts me over the "edge" I would love your help Take care and write
Signed on: Thursday, October 3rd at 12:25PM PDT
Sandra
Pierrefonds, QC CA
sscott@total.net
Link: http://www.total.net/~sscott
Hi, I have been suffering from chronic re-current vertigo since 1985,
accompanied by TINNITUS ringing in my ears since June 13th, 1985 it is
loud 24 hours a day non-stop. If any one of u out there have the same
problem would be glad to hear from u ... -Sandra
Signed on: Monday, October 7th at 11:32AM PDT
Sandra
Pfds, QC CA
mailto:sscott@total.net
Link: http://www.total.net/~sscott
Someone was talking about injections what is that ?
Signed on: Monday, October 7th at 11:34AM PDT
Jim Fowler
Agoura CA USA
Jfowler218@aol.com
I am considering having vestibulas nerve section surgery to correct
menieres symptoms. Using The House Ear Clinic in LA. Dr. Luxford is the
surgeon. My family doctor is discouraging me as it is too dangerous.
Iwould appreciates any comments pro or con Thanks
Signed on: Monday, October 7th at 3:35PM PDT
Jeannie
Colonial Hts,VA USA
gdday@erols.com
Hilbert of Ithaca, NY Sounds like MAl de Debarquement to me I was
diagnosed after a cruise. It has been six months I am pretty lucky some
days I feel almost normal Let me hear from you. Did you read the
comments from Gail of Calif.? I have written to her and gotten quite a
bit of info. GOOD LUCK and let us all help each other.
Signed on: Tuesday, October 8th at 12:25PM PDT
Hilbert
Ithaca,NY
Thanks for all your comments about Mal de Debarquement. My doctor had
no name for it 4 years ago, but we called it the love boat syndrome.
It seems to help to stare at something close by, but that only lasts
for a few secs, but when you feel that you are over the edge it does
help in coping. I've tried to be in motion and retrain my brain to
accept new motion but no luck. Any other suggestions????
Signed on: Tuesday, October 8th at 7:01PM PDT
sharon Eberhardt
Canada
Link: http://temper@worldchat.com
I was diagnosed 4 years ago with bilateral vestibular neuronitis I have
recovered partially but still have bouts of extreme vertigo has anyone
that has visited this site ever recovered totally from ver. Feel free
to E=mail me to temper@worldchat.com
Signed on: Wednesday, October 9th at 10:01AM PDT
Joe
Alexandria, VA US
jhertz@moon.jic.com
3 yrs ago (I'm 28 now),in a completely quiet room, I noticed I had a
very minor ringing in my ears. When my hearing got noticably bad, I
got tested and found I'm losing ALOT of the 2KHZ (speaking) range. It
sounds like something between Crickets, Seagulls and the NCC-1701
Bridge. I persuaded my Doc to try Xanax per the OHSU Study. I'm told
it's hereditary (Dad has a similar pattern, but no ringing) I'm told
this is unusual, which strangely gives me hope. Ideas?!
Signed on: Thursday, October 10th at 8:58PM PDT
Mary Carlson
Cobble Hill, British Columbia Canada
markir@islandnet.com
Have had menieres since 1989, and it gets better and better every year.
I go to a chinese herbalist when I feel bouts coming on, and he gives
me tea to brew which really helps. Avoid salty foods, caffiene, and
alcohol. Drink herbal diuretics, which also helps.
Signed on: Monday, October 14th at 9:43AM PDT
LINDA
MERRITT ISLAND, FL USA
twocats@castlegate.net
I woke up 3 months ago with spinning sensations. It lasted a couple of
days and then I would be ok for a couple of days and then be dizzy. Its
worst in hallways, open spaces like parking lots, driving and grocery
stores. I have been to an internist, neurologist and ENT specialist
all cannot find anything wrong. Heres a twist...I went on a cruise this
weekend and was not dizzy the whole time I was on it. I did not take
any drugs. (I might add that I've never been nauscious with this (on
Signed on: Tuesday, October 15th at 6:18PM PDT
Evelyn B.
Davis, CA USA
Have had following symptoms for several days: dizzy, disoriented,
really poor short term memory, burning eyes, stuffy head. unsteady
gait. Taking meclizine but it wipes me out. Diagnosed with viral
labyrinthitis. What's the REAL prognosis? Where did it come from?
I'm scared to do anything! What's "normal"? What are r"reasonable
activities" to continue? Driving? exercises? This is scarey!
Signed on: Wednesday, October 16th at 2:37PM PDT
William Zolner
Kingwood, Texas USA
zolnerw@msn.com
Signed on: Wednesday, October 16th at 7:58PM PDT
Osacar A.Calderon
San Francisco, CA USA
minina@msn.com
Since Oct 10, 1996 I have had a dizziness. I went to a hospital
(University of California, San Francisco) on Oct 13. However, they did
not find what was causes of dizziness. At that time, I had a vomting,
severe headache, pain near nose, fatigue, and difficulty of keep me
standing. Now I suffer from dizziness. I have no idea. Please let me
know what is a cause of dizziness. Thank you.
Signed on: Saturday, October 19th at 12:49AM PDT
Kimberly Vigil
Yuba City, CA. USA
Hi all, Ive had menieres? for 3 years. It comes and goes, but when I
have it, it is debilatating. I find it extremely hard to work. My Dr.
cannot come up with a diagnosis. She is still running expensive tests.
I am starting herbal treatment on my own, Gingko Biloba and other
herbal anthistamines and diuretics. Anybody with any other ideas please
email me.
Signed on: Friday, October 25th at 8:18PM PDT
Bob Jones
Running Springs USA
Diagnosed with the "beginnings of Meniere's": constant tinnitus, and
bouts of (fortunately) mild vertigo. Some relief with Dyazide, but
best was the accidental discovery that exercise really helps. My
speculation is that it's the vasodilation that accompanies strenuous
exercise. For that reason I'm going to try ginko biloba extract,
also a vasodilator. I'll post the results in a few weeks.
Signed on: Saturday, October 26th at 9:54PM PDT
RHONDA A FLACK
WASHINGTON, D.C. USA
Link: http://12RFLACK@GALLAUDET.GALLUA.EDU
I HAVE THE MENIERE'S DISEASE VIA VERTIGO. I HAVE IT FOR ALMOST TWO
YEARS AND I HAVE BEEN COPING WITH THE DIZZINESS ATTACKS. I LEARNED
THAT I HAVE THE ANXIETY PROBLEM THAT PROBABLY CAUSE DIZZINESS ATTACKS.
TO COPE WITH THE ATTACKS IS THE ONLY THING I LEARNED IS TO RELEASE THE
TENSIONS IN MY BODY TO RELAX. I WONDER HOW MANY PERCENT OF THOSE WHO
HAVE THE SIMILAR DISEASE?
Signed on: Sunday, October 27th at 11:52AM PST
Kathy Flament
Newton, MA USA
What treatments work, what can I expect as % of recovery. Doctors now,
finally listening, but would like to know some specialists. HMO not
deep enough to really know how to diagnose and treat. Kathy
Flament@aol.com
Signed on: Sunday, October 27th at 12:57PM PST
Rhonda A. Flack
washington, dc USA
Signed on: Sunday, October 27th at 3:56PM PST
Theresa Sherman
Fort Macleod,AB,Canada USA
I have suffered for nearly 12 years with 'Meneires Disease', and am
having trouble coping mentally with it. HELP!!
Signed on: Sunday, October 27th at 6:10PM PST
Alice Chien
Victoria Australia
Vertigo is horrible and whoever created us was really stupid to invent
such a stupid and pointless thing.
Signed on: Wednesday, October 30th at 3:57PM PST
Tom Shouse
Phoenix, AZ USA
KK7BQ@aol.com
Have had Meniere's Disease for 20+ years. No vertigo in last 5 years,
but tinnitus and hearing loss is permanent. Hearing aids are a must.
Attribute absense of vertigo to eating herbal foods at that time.
Healthy diet, moderate exercise and stress reduction have been more
helpful than any medication ever was. Would love to hear via EMAIL
from anyone who would like to talk about vertigo.
Signed on: Saturday, November 2nd at 8:35AM PST
mike niemi
mpls mn USA
Link: http://members.gnn.com/MNiemi/win/easy.htm
My father had this, i am sure, he told me he got dizzy and angry and
had an operation done (1960s) on his ears, and he thought they punched
a hole in his eardrum. My brother committed suicide, and I wonder, see
the survey results of one person "holding on by a thread" that anxiety
is the biggest threat. Hang on people, its a real threat to you, but
don't give up hope, someone always finds a way out, don't let the
desease destroy you, its really not that powerful.
Signed on: Saturday, November 2nd at 9:52PM PST
Jamie Wilson
Summerland,B.C. Can.
my vestibular function began deteriorating in july of this year . all
my function is now gone. so I am new to being dizzy most of the time.
Signed on: Thursday, November 7th at 7:42PM PST
SUE
ROCKFORD, MI USA
Link: http://SPENZOO@ISERV.NET
I have been experiencing dizzyness for over six weeks. My general MD
sent me to an ENT during the 3rd week. So far no one knows the cause.
I have had an ENG, MRI and a complete blood work-up taken. No
answers are forth coming. And the ENT will not see me for another 4
weeks after our 1 and only meeting. Is there something I should be
doing to facilitate a diagno sis? or anything I can do to get on with
my life? Private meassage please. Thank you
Signed on: Tuesday, November 5th at 3:00PM PST
Miss Ellie
Irvine, CA USA
Dr Baloh of UCLA Neuro Clinic - world expert on dizziness - is a
misnomer as he is an expert on vertigo stemming from inner ear. One
visit usually does it. Rather violent movement of body to shake loose
"sand" that is throwing one into a spin. My dizziness is from old
spinal injury. Dr couldn't help or advise. Anyone out there who can
help me?
Signed on: Wednesday, November 13th at 7:10AM PST
Chris Woods
Kirkville N.Y. USA
I have been diagnosed with right sided vestibular Neuronitis.I have had
this for 3 years. I have been doing rehab for 5 months. I don't feel
better. Klonopin helped,but Drs. wanted me off to do rehab. I sometimes
get depressed. Has anyone been able to take antidepressant. If so what?
I would love to here from anyone with this problem.
Signed on: Wednesday, November 13th at 7:03PM PST
Paul Zaleon
Springfield, NJ USA
pdznet@ix.netcom.com
Hi, everyone and best wishes to all. Some of the coping techniques I
employ include deep abdominal breathing to reduce anxiety/stress,
acupunture to include blood circulation, yoga and tai chi which are
useful balance retraining exercises, aerobics, a diet which avoids
caffeine, high salt, and sugar, the herbal remedies gingko biloba and
ginger which are known to ease vertigo and motion sickness. Feel free
to e-mail me to exchange ideas. Best of luck to everyone. Paul
Signed on: Friday, November 15th at 5:32PM PST
Debbie Jussinoja
North Vancouver, B.C. Canada
debharry@direct.ca
I've been dizzy for 4 and a half months. It doesn't come in attacks; it
is with me 24 hours a day. When I walk the floor feels like it is
moving up and down and when I lie down I feel like I'm on a boat. I
also have the sensation that I am being shaken back and forth rapidly.
Despite ENG, CAT scan, ENT exam I have no diagnosis or prognosis. I am
currently trying acupuncture. It seems to be working for the nausea,
but not the dizziness. Has anyone had any success with this method of
Signed on: Saturday, November 16th at 4:42PM PST
Sara Douglass
Bendigo Australia
douglass@bendigo.net.au
Dizziness for ages, drugs not much help, BUT worst of the problem is
alleviated when I walk by a) wearing a walkman with soothing baroque
music playing and b) fixing my vison on a point in the mid distance
and not letting my eyes wander - hey presto! Dizziness goes! Works for
me. But the music is good, often wear it about the house and it truly
DOES help.
Signed on: Monday, November 18th at 2:45AM PST
Timothy Ira Purcell
Flagstaff, AZ USA
Hello! I am 41 and have suffered the following due to the severe
nature of my vestibular disorder(s):Bedridden from 10/02/92 - 08/??/93
MUCH abuse from ignorant docs; Failed Shunt operation By Dr.John House
on 09/29/93; Failed translabyrintine cochleovestibular nerve section
on 01/25/94 by Dr.House (Vascular loop found); Diagnosed with micro-
vascular compression by Dr.Margareta Moller of P.U.H in May of 1995;
Diagnosed Vestibular Migraine by Dr.Baloh 07/03/95; Wife left 02/13/95
Signed on: Monday, November 18th at 10:16AM PST
Timothy Ira Purcell
Flagstaff, AZ USA
Hello again! Much detail left out due to space limitations, but I
will be happy to share more with others as I have done much research
on Vestibular disorders, and have amassed a great deal of information
in this area. There remains much to learn, but by sharing our "trips
down the largely uncharted path," WE can help each other cope with the
vast array of very frighting symtoms in a way that no doctor could ever
hope to. I will provide a venue for others to contact me A.S.A.P.
Signed on: Monday, November 18th at 10:40AM PST
Kimberly Vigil
Yuba City, CA USA
svigil@succeed.net
Hi again everyone, forgot to leave my email address last time. Still
fighting vertigo and getting discouraged. I NEED to know if others are
confused and disoriented. I feel like Im losing my mind, esp when under
stress, confusion is ten fold, i.e.(cant concentrate, add numbers,
talk coherently, etc.) If you feel the same please email
me....svigil@succeed.net
Signed on: Monday, November 18th at 1:06PM PST
Miss Ellie
Irvine, CA USA
v_tail@msn.com
Hello again. I, too, forgot to leave my email address. Still dizzy.
Some days good, others awful. The spells cause much anxiety but I have
found that Xanax has helped. I still feel that this may be caused by
pressure put on the spinal column somewhere in the neck area.
Chiropractic sessions, including electric stimulation, helps - but not
all of the time! I'm still stumped and tired of feeling like this!
Signed on: Tuesday, November 19th at 2:49PM PST
C. Carroll
Alexandria, VA usa
ropedrum@erols.com
Good to know so many have the same problem. I've had mine since 1985.
Dizzy much of the time with transient vertigo. Pressure in and around
nose and below eyes, feels like sinus pressure, sometimes nasty
headaches on one side. No ryhme or reason to attacks. Meditation
seems to work-thinking about something relaxing- or just sitting and
closing eyes. It helps if you can talk to someone about it (other than
a doctor) they don't seem to be able to help anyway!
Signed on: Thursday, November 21st at 10:38AM PST
Amy Legere
New Westminster Canada
amylis@siwash.bc.caI have been diagnosis with Vestibular Neuronitis
I have been diagnosis with Vestibular Neuronitis with left Vestibular
hypofunction. Iam having problems with my balancs ,nausea, vering to
the lrft when walking,heavy left leg as the day goes on,heavy head with
soreness in neck and shoulders,like my head is to heavy to hold up. I
have a hard time sleeping . I have severe sensorineural hearing loss
and horizontal nystagmus. I do excerises for 20 minutes 3 times a day
at least.
Signed on: Thursday, November 21st at 4:59PM PST
Su Gatch
Santa Cruz, CA USA
sugatch@aol.com
Rocking feeling, tinnitus & weak feeling in legs/left arm started summer
of 1995. Can you get Mal de Debarquement from flying? Or jet lag that
never stops? Had ENG,MRI,lots og blood tests, no results.Dr. gave me
Xanax for snxiety -- bingo, symptoms gone! (Big mystery to the doc!)
For a long term solution, I'm doing classical homepathy, combined
w/yoga for anxiety, excercise and a zillion vitamins to keep the rest
of me healthy. Anybody else tried homeopathy?
Signed on: Monday, November 25th at 11:37PM PST
shirley abbott
USA
Signed on: Wednesday, December 4th at 6:04PM PST
Rob Lymburner
Springfield, VA USA
rlymburner@aol.com
I just found out that my wife might have Meniere's disease. Where do I
look for information on this? I am looking also for information on
where she can be tested reliably in the Wash D.C. area (we don't trust
her "specialist") if the original diagnosis is correct. Prayers
would help...
Signed on: Wednesday, December 4th at 9:34PM PST
MARGARET GARBUZINSKI
MEMPHIS, TN USA
GARBUZINSK!
I HAVE CHRONIC VERTIGO FROM A CEREBRAL ANEURYSM AND STROKE OR FROM
TRAVELING ON AN AIRPLANE AFTER THE OPERATION. I DON'T HAVE BPPMOR
MENIGERE DISEASE BUT DON'T KNOW WHAT I HAVE. I HAVE IT ALL THE TIME
WHENI'M AWAKE UNLESS I LIE DOWN AND DON'T MOVE MY HEAD.
Signed on: Sunday, December 8th at 4:08PM PST
Judi Ellis
Romulus, Michigan US
snicker112@aol.com
Link: http://aol.com
I have a vistibular disorder. I have constant bouncing vision. My
dizzynes was helped by a vistibular theraphist. Now I just feel off
balance occasionally.
Signed on: Thursday, December 12th at 4:25PM PST
Chris Woods
Kirkville, N.Y. USA
Qualitytm@aol.com
Hi..I forgot to leave my E-mail address. I have Vestibular Neurontis in
the right ear. I'm doing vestibular exercises and found Klonopin to
help. I would love to hear from anyone that would like to share their
experiences or thoughts!
Signed on: Thursday, December 12th at 8:14PM PST
Larry Naylor
Morganton, NC USA
lmn@hci.net
Hello, Vertigo/dizziness for 11 months now. Came on gradually. I have a
fear of open spaces/hard surfaces. OK when not on my feet or
walking.Antivert no help.I feel that slight disability from neck
spinal cord injury 20 years ago is major factor along with stress
about the condition, but don't know what triggered the vertigo.
Gingko-Bilobo started 2 weeks ago seems to be helping a little,will
continue taking it. Would like to hear from others... :)
Signed on: Sunday, December 15th at 5:55PM PST
Melissa B.
Arizona USA
barletm@pobox.com
When I start to have a vertigo spin or extreme dizziness, I use several
techniques to distract my mind and stop the spin. You may want to try
one or more of these to see what works for you: count backwards from
100 by 3's; name all of the students in your high school graduating
class; name every teacher you've ever had; name all of the
southern/eastern/western/etc. states in USA. Hope you are having a
non-dizzy day! Melissa B.
Signed on: Monday, December 16th at 9:15AM PST
Michelle
L.I., NY USA
Boruchow@aol.com
I have been suffering with dizziness, fuzziness etc. for 2 years. Have
had MRI, ENG, glucose tolerance, bloodwork. Went to otolaryngologist
who diagnosed it as vestibular neuritis . He gave me vestibular
exercises called "Cawthornes" where I rotate my head 360 degrees for
60 seconds 10 times a day. It helped for 2 weeks but now I'm dizzy
again. Any suggestions? Natural therapy? Appreciate your reply.(I'm
not even positive I have vestibular neuritis since there is no
Signed on: Tuesday, December 17th at 6:19PM PST
Pam M
Crystal Lake, Illinois USA
pmiller@nslsilus.org
Anyone had vertigo/balance problems resulting from taking the drug
Flagyl?
Signed on: Wednesday, December 18th at 5:34PM PST
Barbara Kerns
Pa. USA
My mother-in-law is suffering with the following symptons: unsteady
gait, slurred speech, confusion, lapse in memory, fatigue. A recent
CT scan showed no impairment, however, blood test results have her now
receiving B12 shots. From what I have read, she may have one of the
disabilties being discussed. If so, from your experience, which one
could it be? She is a very lovely 81 year old lady, who continues to
work three days a week. She deserves to be properly diagnosed.
Signed on: Wednesday, December 18th at 11:05PM PST
Cora
Boulder, CO US
I'm 16 and have had dizzy spells, etc., etc. for as long as I can
remember. I was diognosed with a vestibular disfunction when I was in
kindergarden, though I don't know what kind. HINT: a way to get relief
from some "humming" in the ears is to hum or whistle on the same tone!
Signed on: Saturday, December 28th at 4:44PM PST
Rachel
Bangkok Thailand
rachelias@hotmail.com
Link: http://www.geocities.com/SoHo/7521
I'm 16 and was diagnosed with vertigo due to a cold about 4 weeks ago,
they gave me Iv medication for seasickness and released me from
hospital...but the dizziness never completely wet...it's now come back
horribly, I can't tell anyone though, they think I'm fine and i dont
want them to worry...I mean I am fine except for the vertigo which is
really frustrating and i often find myself in tears begging it to go
away..any remedies which will definately work straight away???Please
Signed on: Tuesday, December 31st at 2:39AM PST
Glenda Spitzer
Hillsdale, NJ USA
spitzer@tribeca.ios.com
Signed on: Wednesday, January 1st at 9:57AM PST